Cargando…

Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences

OBJECTIVE: To assess the inclusion of patients as international research partners in Outcome Measures in Rheumatology (OMERACT) conferences and how this has influenced the scope and conduct of outcomes research in rheumatology. DESIGN: A thematic content analysis of OMERACT internal documents, publi...

Descripción completa

Detalles Bibliográficos
Autores principales:	de Wit, Maarten, Abma, Tineke, Koelewijn-van Loon, Marije, Collins, Sarah, Kirwan, John
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2013
Materias:	Rheumatology
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3651970/ https://www.ncbi.nlm.nih.gov/pubmed/23667160 http://dx.doi.org/10.1136/bmjopen-2012-002241

Ejemplares similares

Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences—lessons learnt from a decade of collaboration in OMERACT: a qualitative study
por: de Wit, Maarten, et al.
Publicado: (2013)

What have we learned from a decade of patient involvement in OMERACT and its effect on trial outcome assessments?
por: Kirwan, John R, et al.
Publicado: (2011)

Chronic non-bacterial osteitis from the patient perspective: a health services research through data collected from patient conferences
por: Silier, Colen Cooper Gore, et al.
Publicado: (2017)

Scoping review of priority setting of research topics for musculoskeletal conditions
por: Bourne, Allison M, et al.
Publicado: (2018)

Barriers to Enrollment in Rheumatology Research: Who, What, Where, When, and Why?
por: Sandhu, Vaneet K, et al.
Publicado: (2022)

Successful Stepwise Development of Patient Research Partnership: 14 Years’ Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT)
por: de Wit, Maarten, et al.
Publicado: (2016)

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: a Q-methodology study
por: Flurey, Caroline A, et al.
Publicado: (2016)

Experiences and perceptions of patients with psoriatic arthritis participating in a trial of faecal microbiota transplantation: a nested qualitative study
por: Kragsnaes, Maja Skov, et al.
Publicado: (2021)

Foot Involvement as the First Manifestation in Rheumatoid Arthritis Patients in Lahore
por: Ali Khan, Sajid, et al.
Publicado: (2021)

Pain mechanisms and ultrasonic inflammatory activity as prognostic factors in patients with psoriatic arthritis: protocol for a prospective, exploratory cohort study
por: Højgaard, Pil, et al.
Publicado: (2016)

Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive–behavioural approaches
por: Hewlett, S, et al.
Publicado: (2015)

The digestive system involvement of antiphospholipid syndrome: pathophysiology, clinical characteristics, and treatment strategies
por: Zhang, Jin, et al.
Publicado: (2021)

Do β-adrenoreceptor blocking drugs associate with reduced risk of symptomatic osteoarthritis and total joint replacement in the general population? A primary care-based, prospective cohort study using the Clinical Practice Research Datalink
por: Nakafero, Georgina, et al.
Publicado: (2019)

Stress at Home and Female Gender Are Significantly Associated With Non-adherence and Poor Illness Perception Among Patients With Rheumatoid Arthritis
por: Hashmi, Farzana, et al.
Publicado: (2022)

OMERACT: An international initiative to improve outcome measurement in rheumatology
por: Tugwell, Peter, et al.
Publicado: (2007)

Leukocytoclastic Vasculitis with Systemic Involvement Associated with Ciprofloxacin Therapy: Case Report and Review of the Literature
por: Morgado, Bruno, et al.
Publicado: (2016)

Neuropsychiatric Systemic Lupus Erythematosus Involvement: Towards a Tailored Approach to Our Patients?
por: Faria, Raquel, et al.
Publicado: (2017)

Cohort profile: The Applied Public-Private Research enabling OsteoArthritis Clinical Headway (IMI-APPROACH) study: a 2-year, European, cohort study to describe, validate and predict phenotypes of osteoarthritis using clinical, imaging and biochemical markers
por: van Helvoort, Eefje M, et al.
Publicado: (2020)

Meta-analysis of anti-Saccharomyces cerevisiae antibodies as diagnostic markers of Behçet’s disease with gastrointestinal involvement
por: Cheng, Linlin, et al.
Publicado: (2020)

Foot orthoses for people with rheumatoid arthritis, involving quantitative and qualitative outcomes: protocol for a randomised controlled trial
por: Ramos-Petersen, Laura, et al.
Publicado: (2020)

Osteoarthritis: Can We Do Better?
por: Collins, Dylon P, et al.
Publicado: (2022)

The Relationship Between Knee Osteoarthritis-Related Pain Severity and Daily Activities Involving the Upper and Lower Limbs in Saudi Adults: A Cross-Sectional Study
por: Vennu, Vishal, et al.
Publicado: (2023)

Researchers’ perspectives on methodological challenges and outcomes selection in interventional studies targeting medication adherence in rheumatic diseases: an OMERACT-adherence study
por: Salmasi, Shahrzad, et al.
Publicado: (2021)

Efficacy of tofacitinib in reduction of inflammation detected on MRI in patients with Psoriatic ArthritiS presenTing with axial involvement (PASTOR): protocol of a randomised, double-blind, placebo-controlled, multicentre trial
por: Proft, Fabian, et al.
Publicado: (2021)

Juvenile Idiopathic Arthritis in the Era of International Cooperation
por: Uziel, Yosef
Publicado: (2017)

Assessment of blood clot formation and platelet receptor function ex vivo in patients with primary Sjögren's syndrome
por: Collins, K S, et al.
Publicado: (2013)

Involving patients as research partners in research in rheumatology: a literature review in 2023
por: Elhai, Muriel, et al.
Publicado: (2023)

Reliability of the Preliminary OMERACT Juvenile Idiopathic Arthritis MRI Score (OMERACT JAMRIS-SIJ)
por: Otobo, Tarimobo M., et al.
Publicado: (2021)

NET-RMDs study: networks of fatigue and pain in rheumatic and musculoskeletal diseases – protocol for an international cross-sectional study
por: Gavilán-Carrera, Blanca, et al.
Publicado: (2022)

Validity of the Italian algorithm for the attribution of neuropsychiatric events in systemic lupus erythematosus: a retrospective multicentre international diagnostic cohort study
por: Bortoluzzi, Alessandra, et al.
Publicado: (2017)

From individualised treatment goals to personalised rehabilitation in osteoarthritis: a longitudinal prospective mapping study using the WHO international classification for functioning, disability and health
por: Stefanac, Sinisa, et al.
Publicado: (2022)

The FOOTPATH study: protocol for a multicentre, participant- and assessor-blind, parallel group randomised clinical trial of foot orthoses for patellofemoral osteoarthritis
por: Collins, Natalie J, et al.
Publicado: (2019)

Ethics framework for citizen science and public and patient participation in research
por: Groot, Barbara, et al.
Publicado: (2022)

Zoledronate in the prevention of Paget’s (ZiPP): protocol for a randomised trial of genetic testing and targeted zoledronic acid therapy to prevent SQSTM1-mediated Paget’s disease of bone
por: Cronin, Owen, et al.
Publicado: (2019)

Boundary Objects: Engaging and Bridging Needs of People in Participatory Research by Arts-Based Methods
por: Groot, Barbara, et al.
Publicado: (2021)

Assessing the effect of interventions for axial spondyloarthritis according to the endorsed ASAS/OMERACT core outcome set: a meta-research study of trials included in Cochrane reviews
por: Andreasen, Rikke A., et al.
Publicado: (2020)

Sacroiliac joint involvement in ochronotic arthropathy
por: Yüce İnel, Tuba, et al.
Publicado: (2021)

Gout and the risk for incident heart failure and systolic dysfunction
por: Krishnan, Eswar
Publicado: (2012)

Influence of FCGR3A genotype on the therapeutic response to rituximab in rheumatoid arthritis: an observational cohort study
por: Kastbom, Alf, et al.
Publicado: (2012)

A qualitative interview study: patient accounts of medication use in early rheumatoid arthritis from symptom onset to early postdiagnosis
por: Townsend, Anne, et al.
Publicado: (2013)

Cannot write session to /tmp/vufind_sessions/sess_1l721eiiisi4lk02koooq03hio