Cargando…
A tiered-layered-staged model for informed consent in personal genome testing
In recent years, developments in genomics technologies have led to the rise of commercial personal genome testing (PGT): broad genome-wide testing for multiple diseases simultaneously. While some commercial providers require physicians to order a personal genome test, others can be accessed directly...
Autores principales: | Bunnik, Eline M, Janssens, A Cecile J W, Schermer, Maartje H N |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group
2013
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3658183/ https://www.ncbi.nlm.nih.gov/pubmed/23169494 http://dx.doi.org/10.1038/ejhg.2012.237 |
Ejemplares similares
-
The role of disease characteristics in the ethical debate on personal genome testing
por: Bunnik, Eline M, et al.
Publicado: (2012) -
Personal genome testing: Test characteristics to clarify the discourse on ethical, legal and societal issues
por: Bunnik, Eline M, et al.
Publicado: (2011) -
Informed consent practices for exome sequencing: An interview study with clinical geneticists in the Netherlands
por: Bos, Wendy, et al.
Publicado: (2022) -
Tiered informed consent: respecting autonomy, agency and individuality in Africa
por: Tiffin, Nicki
Publicado: (2018) -
An e-consent framework for tiered informed consent for human genomic research in the global south, implemented as a REDCap template
por: Tamuhla, Tsaone, et al.
Publicado: (2022)