Illness Perception and Clinical Treatment Experiences in Patients with M. Maroteaux-Lamy (Mucopolysaccharidosis Type VI) and a Turkish Migration Background in Germany

INTRODUCTION: Mucopolysaccharidosis VI (MPS VI) is an inherited lysosomal storage disease caused by a mutation of the gene for arylsulfatase B (ASB). Of the thirty-one patients registered in Germany, almost fifty percent have a Turkish migration background. MPS VI is treated by enzyme replacement th...

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Detalles Bibliográficos
Autores principales: Dilger, Hansjörg, Leissner, Linn, Bosanska, Lenka, Lampe, Christina, Plöckinger, Ursula
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2013
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3691296/
https://www.ncbi.nlm.nih.gov/pubmed/23826140
http://dx.doi.org/10.1371/journal.pone.0066804

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