Cargando…

A mixed-methods study of the Care Needs of individuals with idiopathic Pulmonary fibrosis and their carers—CaNoPy: a study protocol

INTRODUCTION: Idiopathic pulmonary fibrosis (IPF) is a progressive, life-threatening illness of unknown aetiology, with no proven pharmacological treatments. There is a limited evidence base indicating that the disease negatively affects quality of life, leading to increased dependence, restrictions...

Descripción completa

Detalles Bibliográficos
Autores principales:	Byrne, Anthony, Sampson, Cathy, Baillie, Jessica, Harrison, Kim, Hope-Gill, Ben, Hubbard, Richard, Griffiths, Gareth, Nelson, Annmarie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2013
Materias:	Respiratory Medicine
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3740245/ https://www.ncbi.nlm.nih.gov/pubmed/23929920 http://dx.doi.org/10.1136/bmjopen-2013-003537

Ejemplares similares

The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study
por: Sampson, Cathy, et al.
Publicado: (2015)

The practice of palliative care from the perspective of patients and carers
por: Sampson, Cathy, et al.
Publicado: (2014)

Are within-person Numerical Rating Scale (NRS) ratings of breathlessness ‘on average’ valid in advanced disease for patients and for patients’ informal carers?
por: Wade, Joshua, et al.
Publicado: (2017)

Neuromuscular Electrical Stimulation of the Quadriceps in Patients with Non-Small Cell Lung Cancer Receiving Palliative Chemotherapy: A Randomized Phase II Study
por: Maddocks, Matthew, et al.
Publicado: (2013)

Idiopathic Pulmonary Fibrosis Registry China study (PORTRAY): protocol for a prospective, multicentre registry study
por: Xie, Bingbing, et al.
Publicado: (2020)

Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients’, carers’ and health professionals’ experiences and further research questions
por: Baillie, Jessica, et al.
Publicado: (2018)

Efficacy and safety of nintedanib in Japanese patients with early-stage idiopathic pulmonary fibrosis: a study protocol for an observational study
por: Sakamoto, Noriho, et al.
Publicado: (2021)

“It’s alright to ask for help”: findings from a qualitative study exploring the information and support needs of family carers at the end of life
por: Harrop, Emily, et al.
Publicado: (2014)

Prognosis of acute exacerbation in idiopathic pulmonary fibrosis with pulmonary emphysema: a retrospective cohort study in Japan
por: Horio, Yukihiro, et al.
Publicado: (2022)

Study of the burden on patients with chronic obstructive pulmonary disease
por: Izquierdo, J L, et al.
Publicado: (2009)

Retrospective observational study of trends in hospital admissions for idiopathic pulmonary fibrosis in Spain (2004–2013) using administrative data
por: Pedraza-Serrano, Fernando, et al.
Publicado: (2017)

Historical database cohort study addressing the clinical patterns prior to idiopathic pulmonary fibrosis (IPF) diagnosis in UK primary care
por: Thickett, David, et al.
Publicado: (2020)

Impact of changes to reimbursement of fixed combinations of inhaled corticosteroids and long-acting β(2)-agonists in obstructive lung diseases: a population-based, observational study
por: Björnsdóttir, U S, et al.
Publicado: (2014)

Bronchiectasis and the risk of cardiovascular disease: a population-based study
por: Navaratnam, Vidya, et al.
Publicado: (2017)

Effects of Nintedanib on Quantitative Lung Fibrosis Score in Idiopathic Pulmonary Fibrosis
por: Lancaster, Lisa, et al.
Publicado: (2020)

A retrospective database study comparing treatment outcomes and cost associated with choice of fixed-dose inhaled corticosteroid/long-acting β(2)-agonists for asthma maintenance treatment in Germany
por: Aballéa, S, et al.
Publicado: (2008)

Prognostic significance of autoantibodies for idiopathic pulmonary fibrosis: protocol for a systematic review
por: Kamiya, Hiroyuki, et al.
Publicado: (2018)

Systematic review and meta-analysis of clinical significance of autoantibodies for idiopathic pulmonary fibrosis
por: Kamiya, Hiroyuki, et al.
Publicado: (2019)

‘The blue one takes a battering’ why do young adults with asthma overuse bronchodilator inhalers? A qualitative study
por: Cole, Sue, et al.
Publicado: (2013)

Systematic review and network meta-analysis of approved medicines for the treatment of idiopathic pulmonary fibrosis
por: Skandamis, Aristeidis, et al.
Publicado: (2019)

Systematic review and meta-analysis of prognostic factors of acute exacerbation of idiopathic pulmonary fibrosis
por: Kamiya, Hiroyuki, et al.
Publicado: (2020)

Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol
por: Bramhill, Carita, et al.
Publicado: (2023)

Systematic review and meta-analysis of prognostic factors for idiopathic inflammatory myopathy-associated interstitial lung disease
por: Kamiya, Hiroyuki, et al.
Publicado: (2018)

Prognostic factors for acute exacerbation of idiopathic pulmonary fibrosis: protocol for a systematic review and meta-analysis
por: Kamiya, Hiroyuki, et al.
Publicado: (2019)

Prognostic factors of idiopathic inflammatory myopathies complicated with interstitial lung disease: protocol for a systematic review and meta-analysis
por: Kamiya, Hiroyuki, et al.
Publicado: (2016)

Efficacy of N-acetylcysteine on idiopathic or postinfective non-cystic fibrosis bronchiectasis: a systematic review and meta-analysis protocol
por: Luo, Ai, et al.
Publicado: (2022)

Electronic reminders and rewards to improve adherence to inhaled asthma treatment in adolescents: a non-randomised feasibility study in tertiary care
por: De Simoni, Anna, et al.
Publicado: (2021)

Efficacy and safety of pirfenidone in the treatment of idiopathic pulmonary fibrosis patients: a systematic review and meta-analysis of randomised controlled trials
por: Wu, Wenjuan, et al.
Publicado: (2021)

Study protocol: azithromycin therapy for chronic lung disease of prematurity (AZTEC) - a randomised, placebo-controlled trial of azithromycin for the prevention of chronic lung disease of prematurity in preterm infants
por: Lowe, John, et al.
Publicado: (2020)

Idiopathic inflammatory myopathies and the lung
por: Lega, Jean-Christophe, et al.
Publicado: (2015)

Perspectives of mild asthma patients on maintenance versus as-needed preventer treatment regimens: a qualitative study
por: Foster, Juliet, et al.
Publicado: (2022)

Release of ATP and glutamate in the nucleus tractus solitarii mediate pulmonary stretch receptor (Breuer–Hering) reflex pathway
por: Gourine, Alexander V, et al.
Publicado: (2008)

The increase in pulmonary arterial pressure caused by hypoxia depends on iron status
por: Smith, Thomas G, et al.
Publicado: (2008)

Optimising treatment for COPD – new strategies for combination therapy
por: Welte, T
Publicado: (2009)

A comparison of budesonide/formoterol maintenance and reliever therapy vs. conventional best practice in asthma management
por: Louis, R, et al.
Publicado: (2009)

Oxygen sensitivity of mitochondrial function in rat arterial chemoreceptor cells
por: Buckler, Keith J, et al.
Publicado: (2013)

Carotid body hyperplasia and enhanced ventilatory responses to hypoxia in mice with heterozygous deficiency of PHD2
por: Bishop, Tammie, et al.
Publicado: (2013)

Impaired CO(2) sensitivity of astrocytes in a mouse model of Rett syndrome
por: Turovsky, Egor, et al.
Publicado: (2015)

Impact of diabetes mellitus on clinical parameters and treatment outcomes of newly diagnosed pulmonary tuberculosis patients in Thailand
por: Duangrithi, D, et al.
Publicado: (2013)

Effect of aerobic fitness on capillary blood volume and diffusing membrane capacity responses to exercise
por: Tedjasaputra, Vincent, et al.
Publicado: (2016)

Cannot write session to /tmp/vufind_sessions/sess_siicj8qh4nrq7d81vkfks54ndq