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The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context
INTRODUCTION: Psychosocial and rehabilitation interventions are increasingly used to attenuate disability and improve health-related quality of life (HRQL) in chronic diseases, but are typically not available for patients with rare diseases. Conducting rigorous, adequately powered trials of these in...
Autores principales: | Kwakkenbos, Linda, Jewett, Lisa R, Baron, Murray, Bartlett, Susan J, Furst, Dan, Gottesman, Karen, Khanna, Dinesh, Malcarne, Vanessa L, Mayes, Maureen D, Mouthon, Luc, Poiraudeau, Serge, Sauve, Maureen, Nielson, Warren R, Poole, Janet L, Assassi, Shervin, Boutron, Isabelle, Ells, Carolyn, van den Ende, Cornelia HM, Hudson, Marie, Impens, Ann, Körner, Annett, Leite, Catarina, Costa Maia, Angela, Mendelson, Cindy, Pope, Janet, Steele, Russell J, Suarez-Almazor, Maria E, Ahmed, Sara, Coronado-Montoya, Stephanie, Delisle, Vanessa C, Gholizadeh, Shadi, Jang, Yeona, Levis, Brooke, Milette, Katherine, Mills, Sarah D, Razykov, Ilya, Fox, Rina S, Thombs, Brett D |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3740254/ https://www.ncbi.nlm.nih.gov/pubmed/23929922 http://dx.doi.org/10.1136/bmjopen-2013-003563 |
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