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Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study
BACKGROUND: Photographs are commonly taken of children in medical and research contexts. With the increased availability of photographs through the internet, it is increasingly important to consider their potential for negative consequences and the nature of any consent obtained. In this research we...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3750443/ https://www.ncbi.nlm.nih.gov/pubmed/23835013 http://dx.doi.org/10.1186/1472-6939-14-27 |
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author | Devakumar, Delan Brotherton, Helen Halbert, Jay Clarke, Andrew Prost, Audrey Hall, Jennifer |
author_facet | Devakumar, Delan Brotherton, Helen Halbert, Jay Clarke, Andrew Prost, Audrey Hall, Jennifer |
author_sort | Devakumar, Delan |
collection | PubMed |
description | BACKGROUND: Photographs are commonly taken of children in medical and research contexts. With the increased availability of photographs through the internet, it is increasingly important to consider their potential for negative consequences and the nature of any consent obtained. In this research we explore the issues around photography in low-resource settings, in particular concentrating on the challenges in gaining informed consent. METHODS: Exploratory qualitative study using focus group discussions involving medical doctors and researchers who are currently working or have recently worked in low-resource settings with children. RESULTS: Photographs are a valuable resource but photographers need to be mindful of how they are taken and used. Informed consent is needed when taking photographs but there were a number of problems in doing this, such as different concepts of consent, language and literacy barriers and the ability to understand the information. There was no consensus as to the form that the consent should take. Participants thought that while written consent was preferable, the mode of consent should depend on the situation. CONCLUSIONS: Photographs are a valuable but potentially harmful resource, thus informed consent is required but its form may vary by context. We suggest applying a hierarchy of dissemination to gauge how detailed the informed consent should be. Care should be taken not to cause harm, with the rights of the child being the paramount consideration. |
format | Online Article Text |
id | pubmed-3750443 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2013 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-37504432013-08-24 Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study Devakumar, Delan Brotherton, Helen Halbert, Jay Clarke, Andrew Prost, Audrey Hall, Jennifer BMC Med Ethics Research Article BACKGROUND: Photographs are commonly taken of children in medical and research contexts. With the increased availability of photographs through the internet, it is increasingly important to consider their potential for negative consequences and the nature of any consent obtained. In this research we explore the issues around photography in low-resource settings, in particular concentrating on the challenges in gaining informed consent. METHODS: Exploratory qualitative study using focus group discussions involving medical doctors and researchers who are currently working or have recently worked in low-resource settings with children. RESULTS: Photographs are a valuable resource but photographers need to be mindful of how they are taken and used. Informed consent is needed when taking photographs but there were a number of problems in doing this, such as different concepts of consent, language and literacy barriers and the ability to understand the information. There was no consensus as to the form that the consent should take. Participants thought that while written consent was preferable, the mode of consent should depend on the situation. CONCLUSIONS: Photographs are a valuable but potentially harmful resource, thus informed consent is required but its form may vary by context. We suggest applying a hierarchy of dissemination to gauge how detailed the informed consent should be. Care should be taken not to cause harm, with the rights of the child being the paramount consideration. BioMed Central 2013-07-09 /pmc/articles/PMC3750443/ /pubmed/23835013 http://dx.doi.org/10.1186/1472-6939-14-27 Text en Copyright © 2013 Devakumar et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Article Devakumar, Delan Brotherton, Helen Halbert, Jay Clarke, Andrew Prost, Audrey Hall, Jennifer Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
title | Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
title_full | Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
title_fullStr | Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
title_full_unstemmed | Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
title_short | Taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
title_sort | taking ethical photos of children for medical and research purposes in low-resource settings: an exploratory qualitative study |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3750443/ https://www.ncbi.nlm.nih.gov/pubmed/23835013 http://dx.doi.org/10.1186/1472-6939-14-27 |
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