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Parental Permission and Child Assent in Research on Children

Grounded on the ethical principle of respect for persons, parental permission and child assent function together to protect the child and to foster the development of the child’s self-determination. Although both parental permission and child assent involve the same components of information sharing...

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Autores principales: Roth-Cline, Michelle, Nelson, Robert M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: YJBM 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3767214/
https://www.ncbi.nlm.nih.gov/pubmed/24058304
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author Roth-Cline, Michelle
Nelson, Robert M.
author_facet Roth-Cline, Michelle
Nelson, Robert M.
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description Grounded on the ethical principle of respect for persons, parental permission and child assent function together to protect the child and to foster the development of the child’s self-determination. Although both parental permission and child assent involve the same components of information sharing, comprehension, and voluntariness, how these three components are understood and operationalized should differ depending on the developmental level of the child. For example, the amount of information that a child must comprehend to provide meaningful and developmentally appropriate child assent (or dissent) should be allowed to vary with the age and maturity of the child. By understanding child assent together with the important protections of parental permission, child assent does not need to be burdened with the same informational and process requirements. As a result, the age (as a proxy for developmental stage) at which a child is deemed capable of assent would be lower (i.e., 5 to 7 years old). By assuming a lack of capacity, the potential arises to dishonor and disregard a child’s wishes by failing to solicit meaningful assent or dissent. Further research needs to be done on how best to obtain truly informed and voluntary parental permission and child assent for research participation.
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spelling pubmed-37672142013-09-20 Parental Permission and Child Assent in Research on Children Roth-Cline, Michelle Nelson, Robert M. Yale J Biol Med Focus: Research and Clinical Ethics Grounded on the ethical principle of respect for persons, parental permission and child assent function together to protect the child and to foster the development of the child’s self-determination. Although both parental permission and child assent involve the same components of information sharing, comprehension, and voluntariness, how these three components are understood and operationalized should differ depending on the developmental level of the child. For example, the amount of information that a child must comprehend to provide meaningful and developmentally appropriate child assent (or dissent) should be allowed to vary with the age and maturity of the child. By understanding child assent together with the important protections of parental permission, child assent does not need to be burdened with the same informational and process requirements. As a result, the age (as a proxy for developmental stage) at which a child is deemed capable of assent would be lower (i.e., 5 to 7 years old). By assuming a lack of capacity, the potential arises to dishonor and disregard a child’s wishes by failing to solicit meaningful assent or dissent. Further research needs to be done on how best to obtain truly informed and voluntary parental permission and child assent for research participation. YJBM 2013-09-20 /pmc/articles/PMC3767214/ /pubmed/24058304 Text en Copyright ©2013, Yale Journal of Biology and Medicine https://creativecommons.org/licenses/by-nc/3.0/This is an open access article distributed under the terms of the Creative Commons CC BY-NC license, which permits use, distribution, and reproduction in any medium, provided the original work is properly cited. You may not use the material for commercial purposes.
spellingShingle Focus: Research and Clinical Ethics
Roth-Cline, Michelle
Nelson, Robert M.
Parental Permission and Child Assent in Research on Children
title Parental Permission and Child Assent in Research on Children
title_full Parental Permission and Child Assent in Research on Children
title_fullStr Parental Permission and Child Assent in Research on Children
title_full_unstemmed Parental Permission and Child Assent in Research on Children
title_short Parental Permission and Child Assent in Research on Children
title_sort parental permission and child assent in research on children
topic Focus: Research and Clinical Ethics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3767214/
https://www.ncbi.nlm.nih.gov/pubmed/24058304
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