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Initial development and validation of a mitochondrial disease quality of life scale
Mitochondrial diseases are a clinically diverse group of genetic disorders that often present to neurologists. Health related quality of life (HRQOL) is increasingly recognised as a fundamental patient based outcome measure in both clinical intervention and research. Generic outcome measures have be...
Autores principales: | Elson, J.L., Cadogan, M., Apabhai, S., Whittaker, R.G., Phillips, A., Trennell, M.I., Horvath, R., Taylor, R.W., McFarland, R., McColl, E., Turnbull, D.M., Gorman, G.S. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Pergamon Press
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3841574/ https://www.ncbi.nlm.nih.gov/pubmed/23433484 http://dx.doi.org/10.1016/j.nmd.2012.12.012 |
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