Assessment of quality of life of the children and parents affected by inborn errors of metabolism with restricted diet: preliminary results of a cross-sectional study

INTRODUCTION: The development in therapeutic strategies has increased survival of children affected by inborn errors of metabolism with restricted diet (IEMRD). These diseases have mild- and long-term consequences on the health. Little is known about the impact on the quality of life (QoL) of childr...

Descripción completa

Detalles Bibliográficos
Autores principales: Fabre, Alexandre, Baumstarck, Karine, Cano, Aline, Loundou, Anderson, Berbis, Julie, Chabrol, Brigitte, Auquier, Pascal
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3848736/
https://www.ncbi.nlm.nih.gov/pubmed/24050652
http://dx.doi.org/10.1186/1477-7525-11-158

Ejemplares similares

Ejemplares similares