The impact of severe osteogenesis imperfecta on the lives of young patients and their parents – a qualitative analysis

BACKGROUND: Osteogenesis imperfecta (OI) is a rare genetic disorder that causes increased bone fragility. Living with, caring for, and parenting a child with OI are all highly demanding and challenging. This study is a temporal analysis of the impact of severe OI on the lives of young patients and t...

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Detalles Bibliográficos
Autores principales: Dogba, Maman Joyce, Bedos, Christophe, Durigova, Michaela, Montpetit, Kathleen, Wong, Trudy, Glorieux, Francis H, Rauch, Frank
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3852302/
https://www.ncbi.nlm.nih.gov/pubmed/24074180
http://dx.doi.org/10.1186/1471-2431-13-153

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