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Assisting a child with tuberous sclerosis complex (TSC): a qualitative deep analysis of parents’ experience and caring needs

OBJECTIVE: This study was aimed to explore parents’ experience of assisting children affected by tuberous sclerosis complex (TSC) with subependymal giant-cell astrocytoma (SEGA) manifestation, in order to understand their caring needs and expectation of support. SETTING AND PROCEDURE: The study was...

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Detalles Bibliográficos
Autores principales:	Graffigna, Guendalina, Bosio, Caterina, Cecchini, Isabella
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2013
Materias:	Qualitative Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3855572/ https://www.ncbi.nlm.nih.gov/pubmed/24319280 http://dx.doi.org/10.1136/bmjopen-2013-003707

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