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Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
OBJECTIVES: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. METHODS: The inven...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3884765/ https://www.ncbi.nlm.nih.gov/pubmed/23919364 http://dx.doi.org/10.1111/cts.12072 |
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author | Wilkins, Consuelo H. Spofford, Mark Williams, Neely McKeever, Corliss Allen, Shauntice Brown, Jen Opp, Jennifer Richmond, Alan Strelnick, A. Hal |
author_facet | Wilkins, Consuelo H. Spofford, Mark Williams, Neely McKeever, Corliss Allen, Shauntice Brown, Jen Opp, Jennifer Richmond, Alan Strelnick, A. Hal |
author_sort | Wilkins, Consuelo H. |
collection | PubMed |
description | OBJECTIVES: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. METHODS: The inventory tool was distributed to each of the 60 CTSAs using a secure web application. RESULTS: Forty‐seven (78%) completed the inventory. The mean number of CRs per CTSA is 21.4 (SD: 14.8). Most CTSAs had community advisory boards (89%) and 94% included CRs in Community Engagement (CE) cores. Only 11% reported a CR being a member of the CTSA leadership team and 19% reported that CRs advise core programs beyond CE. CRs are compensated by 79% of CTSAs. Mean annual compensation is $753 (median: $400). Compensation directly correlated with the number of hours that CRs worked in CTSA activities (r = 0.64; P = 0.001). CONCLUSIONS: This inventory allows CTSAs to better understand how CRs have engaged in activities and brings attention to the limited representation among cores and in leadership roles. CTSAs should, with substantive input from CRs, develop strategies to provide the resources and compensation necessary to better integrate the community in CTSA activities and fully realize the goals of the CTSA vision. |
format | Online Article Text |
id | pubmed-3884765 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2013 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-38847652014-01-13 Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities Wilkins, Consuelo H. Spofford, Mark Williams, Neely McKeever, Corliss Allen, Shauntice Brown, Jen Opp, Jennifer Richmond, Alan Strelnick, A. Hal Clin Transl Sci Research Articles OBJECTIVES: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. METHODS: The inventory tool was distributed to each of the 60 CTSAs using a secure web application. RESULTS: Forty‐seven (78%) completed the inventory. The mean number of CRs per CTSA is 21.4 (SD: 14.8). Most CTSAs had community advisory boards (89%) and 94% included CRs in Community Engagement (CE) cores. Only 11% reported a CR being a member of the CTSA leadership team and 19% reported that CRs advise core programs beyond CE. CRs are compensated by 79% of CTSAs. Mean annual compensation is $753 (median: $400). Compensation directly correlated with the number of hours that CRs worked in CTSA activities (r = 0.64; P = 0.001). CONCLUSIONS: This inventory allows CTSAs to better understand how CRs have engaged in activities and brings attention to the limited representation among cores and in leadership roles. CTSAs should, with substantive input from CRs, develop strategies to provide the resources and compensation necessary to better integrate the community in CTSA activities and fully realize the goals of the CTSA vision. John Wiley and Sons Inc. 2013-06-10 2013-08 /pmc/articles/PMC3884765/ /pubmed/23919364 http://dx.doi.org/10.1111/cts.12072 Text en © 2013 Wiley Periodicals, Inc. Open access. |
spellingShingle | Research Articles Wilkins, Consuelo H. Spofford, Mark Williams, Neely McKeever, Corliss Allen, Shauntice Brown, Jen Opp, Jennifer Richmond, Alan Strelnick, A. Hal Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities |
title | Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities |
title_full | Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities |
title_fullStr | Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities |
title_full_unstemmed | Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities |
title_short | Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities |
title_sort | community representatives’ involvement in clinical and translational science awardee activities |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3884765/ https://www.ncbi.nlm.nih.gov/pubmed/23919364 http://dx.doi.org/10.1111/cts.12072 |
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