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Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities

OBJECTIVES: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. METHODS: The inven...

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Autores principales: Wilkins, Consuelo H., Spofford, Mark, Williams, Neely, McKeever, Corliss, Allen, Shauntice, Brown, Jen, Opp, Jennifer, Richmond, Alan, Strelnick, A. Hal
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3884765/
https://www.ncbi.nlm.nih.gov/pubmed/23919364
http://dx.doi.org/10.1111/cts.12072
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author Wilkins, Consuelo H.
Spofford, Mark
Williams, Neely
McKeever, Corliss
Allen, Shauntice
Brown, Jen
Opp, Jennifer
Richmond, Alan
Strelnick, A. Hal
author_facet Wilkins, Consuelo H.
Spofford, Mark
Williams, Neely
McKeever, Corliss
Allen, Shauntice
Brown, Jen
Opp, Jennifer
Richmond, Alan
Strelnick, A. Hal
author_sort Wilkins, Consuelo H.
collection PubMed
description OBJECTIVES: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. METHODS: The inventory tool was distributed to each of the 60 CTSAs using a secure web application. RESULTS: Forty‐seven (78%) completed the inventory. The mean number of CRs per CTSA is 21.4 (SD: 14.8). Most CTSAs had community advisory boards (89%) and 94% included CRs in Community Engagement (CE) cores. Only 11% reported a CR being a member of the CTSA leadership team and 19% reported that CRs advise core programs beyond CE. CRs are compensated by 79% of CTSAs. Mean annual compensation is $753 (median: $400). Compensation directly correlated with the number of hours that CRs worked in CTSA activities (r = 0.64; P = 0.001). CONCLUSIONS: This inventory allows CTSAs to better understand how CRs have engaged in activities and brings attention to the limited representation among cores and in leadership roles. CTSAs should, with substantive input from CRs, develop strategies to provide the resources and compensation necessary to better integrate the community in CTSA activities and fully realize the goals of the CTSA vision.
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spelling pubmed-38847652014-01-13 Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities Wilkins, Consuelo H. Spofford, Mark Williams, Neely McKeever, Corliss Allen, Shauntice Brown, Jen Opp, Jennifer Richmond, Alan Strelnick, A. Hal Clin Transl Sci Research Articles OBJECTIVES: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. METHODS: The inventory tool was distributed to each of the 60 CTSAs using a secure web application. RESULTS: Forty‐seven (78%) completed the inventory. The mean number of CRs per CTSA is 21.4 (SD: 14.8). Most CTSAs had community advisory boards (89%) and 94% included CRs in Community Engagement (CE) cores. Only 11% reported a CR being a member of the CTSA leadership team and 19% reported that CRs advise core programs beyond CE. CRs are compensated by 79% of CTSAs. Mean annual compensation is $753 (median: $400). Compensation directly correlated with the number of hours that CRs worked in CTSA activities (r = 0.64; P = 0.001). CONCLUSIONS: This inventory allows CTSAs to better understand how CRs have engaged in activities and brings attention to the limited representation among cores and in leadership roles. CTSAs should, with substantive input from CRs, develop strategies to provide the resources and compensation necessary to better integrate the community in CTSA activities and fully realize the goals of the CTSA vision. John Wiley and Sons Inc. 2013-06-10 2013-08 /pmc/articles/PMC3884765/ /pubmed/23919364 http://dx.doi.org/10.1111/cts.12072 Text en © 2013 Wiley Periodicals, Inc. Open access.
spellingShingle Research Articles
Wilkins, Consuelo H.
Spofford, Mark
Williams, Neely
McKeever, Corliss
Allen, Shauntice
Brown, Jen
Opp, Jennifer
Richmond, Alan
Strelnick, A. Hal
Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
title Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
title_full Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
title_fullStr Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
title_full_unstemmed Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
title_short Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
title_sort community representatives’ involvement in clinical and translational science awardee activities
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3884765/
https://www.ncbi.nlm.nih.gov/pubmed/23919364
http://dx.doi.org/10.1111/cts.12072
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