Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice

Rafael Dal-Ré and colleagues discuss how incidental findings are likely to be viewed as potential benefits of research participation in genomics trials, and investigators should implement mechanisms to ensure provision of timely and appropriate care. Ensuring provision of such interventions in count...

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Autores principales: Dal-Ré, Rafael, Katsanis, Nicholas, Katsanis, Sara, Parker, Lisa S., Ayuso, Carmen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2014
Materias:
Policy Forum
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3891615/
https://www.ncbi.nlm.nih.gov/pubmed/24453945
http://dx.doi.org/10.1371/journal.pmed.1001584
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author Dal-Ré, Rafael
Katsanis, Nicholas
Katsanis, Sara
Parker, Lisa S.
Ayuso, Carmen
author_facet Dal-Ré, Rafael
Katsanis, Nicholas
Katsanis, Sara
Parker, Lisa S.
Ayuso, Carmen
author_sort Dal-Ré, Rafael
collection PubMed
description Rafael Dal-Ré and colleagues discuss how incidental findings are likely to be viewed as potential benefits of research participation in genomics trials, and investigators should implement mechanisms to ensure provision of timely and appropriate care. Ensuring provision of such interventions in countries lacking a universal public health care system may prove challenging. Please see later in the article for the Editors' Summary
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spelling pubmed-38916152014-01-21 Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice Dal-Ré, Rafael Katsanis, Nicholas Katsanis, Sara Parker, Lisa S. Ayuso, Carmen PLoS Med Policy Forum Rafael Dal-Ré and colleagues discuss how incidental findings are likely to be viewed as potential benefits of research participation in genomics trials, and investigators should implement mechanisms to ensure provision of timely and appropriate care. Ensuring provision of such interventions in countries lacking a universal public health care system may prove challenging. Please see later in the article for the Editors' Summary Public Library of Science 2014-01-14 /pmc/articles/PMC3891615/ /pubmed/24453945 http://dx.doi.org/10.1371/journal.pmed.1001584 Text en © 2014 Dal-Ré et al http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are properly credited.
spellingShingle Policy Forum
Dal-Ré, Rafael
Katsanis, Nicholas
Katsanis, Sara
Parker, Lisa S.
Ayuso, Carmen
Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice
title Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice
title_full Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice
title_fullStr Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice
title_full_unstemmed Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice
title_short Managing Incidental Genomic Findings in Clinical Trials: Fulfillment of the Principle of Justice
title_sort managing incidental genomic findings in clinical trials: fulfillment of the principle of justice
topic Policy Forum
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3891615/
https://www.ncbi.nlm.nih.gov/pubmed/24453945
http://dx.doi.org/10.1371/journal.pmed.1001584
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