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Introduction to International Ethical Standards Related to Genetics and Genomics

The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this revi...

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Detalles Bibliográficos
Autores principales: Yim, Seon-Hee, Chung, Yeun-Jun
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Korea Genome Organization 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897849/
https://www.ncbi.nlm.nih.gov/pubmed/24465233
http://dx.doi.org/10.5808/GI.2013.11.4.218
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author Yim, Seon-Hee
Chung, Yeun-Jun
author_facet Yim, Seon-Hee
Chung, Yeun-Jun
author_sort Yim, Seon-Hee
collection PubMed
description The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards.
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spelling pubmed-38978492014-01-24 Introduction to International Ethical Standards Related to Genetics and Genomics Yim, Seon-Hee Chung, Yeun-Jun Genomics Inform Review Article The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards. Korea Genome Organization 2013-12 2013-12-31 /pmc/articles/PMC3897849/ /pubmed/24465233 http://dx.doi.org/10.5808/GI.2013.11.4.218 Text en Copyright © 2013 by the Korea Genome Organization http://creativecommons.org/licenses/by-nc/3.0/ It is identical to the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/).
spellingShingle Review Article
Yim, Seon-Hee
Chung, Yeun-Jun
Introduction to International Ethical Standards Related to Genetics and Genomics
title Introduction to International Ethical Standards Related to Genetics and Genomics
title_full Introduction to International Ethical Standards Related to Genetics and Genomics
title_fullStr Introduction to International Ethical Standards Related to Genetics and Genomics
title_full_unstemmed Introduction to International Ethical Standards Related to Genetics and Genomics
title_short Introduction to International Ethical Standards Related to Genetics and Genomics
title_sort introduction to international ethical standards related to genetics and genomics
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897849/
https://www.ncbi.nlm.nih.gov/pubmed/24465233
http://dx.doi.org/10.5808/GI.2013.11.4.218
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