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Introduction to International Ethical Standards Related to Genetics and Genomics
The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this revi...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Korea Genome Organization
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897849/ https://www.ncbi.nlm.nih.gov/pubmed/24465233 http://dx.doi.org/10.5808/GI.2013.11.4.218 |
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author | Yim, Seon-Hee Chung, Yeun-Jun |
author_facet | Yim, Seon-Hee Chung, Yeun-Jun |
author_sort | Yim, Seon-Hee |
collection | PubMed |
description | The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards. |
format | Online Article Text |
id | pubmed-3897849 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2013 |
publisher | Korea Genome Organization |
record_format | MEDLINE/PubMed |
spelling | pubmed-38978492014-01-24 Introduction to International Ethical Standards Related to Genetics and Genomics Yim, Seon-Hee Chung, Yeun-Jun Genomics Inform Review Article The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards. Korea Genome Organization 2013-12 2013-12-31 /pmc/articles/PMC3897849/ /pubmed/24465233 http://dx.doi.org/10.5808/GI.2013.11.4.218 Text en Copyright © 2013 by the Korea Genome Organization http://creativecommons.org/licenses/by-nc/3.0/ It is identical to the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/). |
spellingShingle | Review Article Yim, Seon-Hee Chung, Yeun-Jun Introduction to International Ethical Standards Related to Genetics and Genomics |
title | Introduction to International Ethical Standards Related to Genetics and Genomics |
title_full | Introduction to International Ethical Standards Related to Genetics and Genomics |
title_fullStr | Introduction to International Ethical Standards Related to Genetics and Genomics |
title_full_unstemmed | Introduction to International Ethical Standards Related to Genetics and Genomics |
title_short | Introduction to International Ethical Standards Related to Genetics and Genomics |
title_sort | introduction to international ethical standards related to genetics and genomics |
topic | Review Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3897849/ https://www.ncbi.nlm.nih.gov/pubmed/24465233 http://dx.doi.org/10.5808/GI.2013.11.4.218 |
work_keys_str_mv | AT yimseonhee introductiontointernationalethicalstandardsrelatedtogeneticsandgenomics AT chungyeunjun introductiontointernationalethicalstandardsrelatedtogeneticsandgenomics |