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Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants

BACKGROUND: We investigated the feasibility and validity of and systematized the methods used to enroll and retain participants requiring long-term interdisciplinary collaborations. We carried out this study in the Sukusuku cohort, Mie (SCM), as one of the regional research site of Japan Children’s...

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Autores principales: Yamakawa, Noriko, Koike, Haruka, Ohtani, Noriko, Bonno, Motoki, Tanaka, Shigeki, Ido, Masaru, Komada, Yoshihiro, Kawai, Masatoshi, Yamamoto, Hatsumi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Japan Epidemiological Association 2010
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3920396/
https://www.ncbi.nlm.nih.gov/pubmed/20179375
http://dx.doi.org/10.2188/jea.JE20090165
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author Yamakawa, Noriko
Koike, Haruka
Ohtani, Noriko
Bonno, Motoki
Tanaka, Shigeki
Ido, Masaru
Komada, Yoshihiro
Kawai, Masatoshi
Yamamoto, Hatsumi
author_facet Yamakawa, Noriko
Koike, Haruka
Ohtani, Noriko
Bonno, Motoki
Tanaka, Shigeki
Ido, Masaru
Komada, Yoshihiro
Kawai, Masatoshi
Yamamoto, Hatsumi
author_sort Yamakawa, Noriko
collection PubMed
description BACKGROUND: We investigated the feasibility and validity of and systematized the methods used to enroll and retain participants requiring long-term interdisciplinary collaborations. We carried out this study in the Sukusuku cohort, Mie (SCM), as one of the regional research site of Japan Children’s Study (JCS). METHODS: A total of 467 families who were screened between December 1, 2004 and December 31, 2005, in the Mie-chuo Medical Center and 2 other hospitals; these families were deemed eligible for the study. Of these, a total of 185 families (39.6%) participated in the 4-month observation. Of these families, 5 dropped out at month 9 of the observation; 9, at month 18; 17, at month 30; and 5, at month 42. The retention rates at 9, 18, 30, and 42 months of observation were 97.3%, 92.4%, 83.2%, and 80.5%, respectively. Reinstatement to a previous job was the most common reason for dropouts. RESULTS: We observed that informative consultation notes during observation were beneficial for the retention of participants, and these notes also helped in improving communication between the study subjects and the evaluators during subsequent visits. CONCLUSIONS: In this study, we did not perform the standard checks for child development alone but also investigated the motivating influence of research partnerships with participants. Further, these visits help maintain the motivation levels of the participants and encourage them to contribute for social causes. The results present integration models that can be applied in future relevant longitudinal cohort studies in Japan.
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spelling pubmed-39203962014-02-21 Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants Yamakawa, Noriko Koike, Haruka Ohtani, Noriko Bonno, Motoki Tanaka, Shigeki Ido, Masaru Komada, Yoshihiro Kawai, Masatoshi Yamamoto, Hatsumi J Epidemiol Supplement BACKGROUND: We investigated the feasibility and validity of and systematized the methods used to enroll and retain participants requiring long-term interdisciplinary collaborations. We carried out this study in the Sukusuku cohort, Mie (SCM), as one of the regional research site of Japan Children’s Study (JCS). METHODS: A total of 467 families who were screened between December 1, 2004 and December 31, 2005, in the Mie-chuo Medical Center and 2 other hospitals; these families were deemed eligible for the study. Of these, a total of 185 families (39.6%) participated in the 4-month observation. Of these families, 5 dropped out at month 9 of the observation; 9, at month 18; 17, at month 30; and 5, at month 42. The retention rates at 9, 18, 30, and 42 months of observation were 97.3%, 92.4%, 83.2%, and 80.5%, respectively. Reinstatement to a previous job was the most common reason for dropouts. RESULTS: We observed that informative consultation notes during observation were beneficial for the retention of participants, and these notes also helped in improving communication between the study subjects and the evaluators during subsequent visits. CONCLUSIONS: In this study, we did not perform the standard checks for child development alone but also investigated the motivating influence of research partnerships with participants. Further, these visits help maintain the motivation levels of the participants and encourage them to contribute for social causes. The results present integration models that can be applied in future relevant longitudinal cohort studies in Japan. Japan Epidemiological Association 2010-03-05 /pmc/articles/PMC3920396/ /pubmed/20179375 http://dx.doi.org/10.2188/jea.JE20090165 Text en © 2010 Japan Epidemiological Association. http://creativecommons.org/licenses/by/3.0/ This is an open access article distributed under the terms of Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Supplement
Yamakawa, Noriko
Koike, Haruka
Ohtani, Noriko
Bonno, Motoki
Tanaka, Shigeki
Ido, Masaru
Komada, Yoshihiro
Kawai, Masatoshi
Yamamoto, Hatsumi
Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants
title Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants
title_full Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants
title_fullStr Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants
title_full_unstemmed Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants
title_short Mission in Sukusuku Cohort, Mie: Focusing on the Feasibility and Validity of Methods for Enrolling and Retaining Participants
title_sort mission in sukusuku cohort, mie: focusing on the feasibility and validity of methods for enrolling and retaining participants
topic Supplement
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3920396/
https://www.ncbi.nlm.nih.gov/pubmed/20179375
http://dx.doi.org/10.2188/jea.JE20090165
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