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CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK

This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude t...

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Detalles Bibliográficos
Autores principales: Kaye, Jane, Kanellopoulou, Nadja, Hawkins, Naomi, Gowans, Heather, Curren, Liam, Melham, Karen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3930166/
https://www.ncbi.nlm.nih.gov/pubmed/24136352
http://dx.doi.org/10.1093/medlaw/fwt027
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author Kaye, Jane
Kanellopoulou, Nadja
Hawkins, Naomi
Gowans, Heather
Curren, Liam
Melham, Karen
author_facet Kaye, Jane
Kanellopoulou, Nadja
Hawkins, Naomi
Gowans, Heather
Curren, Liam
Melham, Karen
author_sort Kaye, Jane
collection PubMed
description This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.
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spelling pubmed-39301662014-02-21 CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK Kaye, Jane Kanellopoulou, Nadja Hawkins, Naomi Gowans, Heather Curren, Liam Melham, Karen Med Law Rev Articles This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue. Oxford University Press 2014-03 2013-10-17 /pmc/articles/PMC3930166/ /pubmed/24136352 http://dx.doi.org/10.1093/medlaw/fwt027 Text en © The Author 2013. Published by Oxford University Press. http://creativecommons.org/licenses/by/3.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Articles
Kaye, Jane
Kanellopoulou, Nadja
Hawkins, Naomi
Gowans, Heather
Curren, Liam
Melham, Karen
CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK
title CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK
title_full CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK
title_fullStr CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK
title_full_unstemmed CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK
title_short CAN I ACCESS MY PERSONAL GENOME? THE CURRENT LEGAL POSITION IN THE UK
title_sort can i access my personal genome? the current legal position in the uk
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3930166/
https://www.ncbi.nlm.nih.gov/pubmed/24136352
http://dx.doi.org/10.1093/medlaw/fwt027
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