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Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation
BACKGROUND: Very few researchers have reported on procedures of recruiting, obtaining informed consent, and compensating participants in health research in the Arabian Gulf Region. Empirical research can inform the debate about whether to adjust these procedures for culturally diverse settings. Our...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3937123/ https://www.ncbi.nlm.nih.gov/pubmed/24495499 http://dx.doi.org/10.1186/1472-6939-15-9 |
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author | Killawi, Amal Khidir, Amal Elnashar, Maha Abdelrahim, Huda Hammoud, Maya Elliott, Heather Thurston, Michelle Asad, Humna Al-Khal, Abdul Latif Fetters, Michael D |
author_facet | Killawi, Amal Khidir, Amal Elnashar, Maha Abdelrahim, Huda Hammoud, Maya Elliott, Heather Thurston, Michelle Asad, Humna Al-Khal, Abdul Latif Fetters, Michael D |
author_sort | Killawi, Amal |
collection | PubMed |
description | BACKGROUND: Very few researchers have reported on procedures of recruiting, obtaining informed consent, and compensating participants in health research in the Arabian Gulf Region. Empirical research can inform the debate about whether to adjust these procedures for culturally diverse settings. Our objective was to delineate procedures related to recruiting, obtaining informed consent, and compensating health research participants in the extremely high-density multicultural setting of Qatar. METHODS: During a multistage mixed methods project, field observations and qualitative interviews were conducted in a general medicine clinic of a major medical center in Qatar. Participants were chosen based on gender, age, literacy, and preferred language, i.e., Arabic, English, Hindi and Urdu. Qualitative analysis identified themes about recruitment, informed consent, compensation, and other research procedures. RESULTS: A total of 153 individuals were approached and 84 enrolled; the latter showed a diverse age range (18 to 75 years); varied language representation: Arabic (n = 24), English (n = 20), Hindi (n = 20), and Urdu (n = 20); and balanced gender distribution: women (n = 43) and men (n = 41). Primary reasons for 30 declinations included concern about interview length and recording. The study achieved a 74% participation rate. Qualitative analytics revealed key themes about hesitation to participate, decisions about participation with family members as well as discussions with them as “incidental research participants”, the informed consent process, privacy and gender rules of the interview environment, reactions to member checking and compensation, and motivation for participating. Vulnerability emerged as a recurring issue throughout the process among a minority of participants. CONCLUSIONS: This study from Qatar is the first to provide empirical data on recruitment, informed consent, compensation and other research procedures in a general adult population in the Middle East and Arabian Gulf. This investigation illustrates how potential research participants perceive research participation. Fundamentally, Western ethical research principles were applicable, but required flexibility and culturally informed adaptations. |
format | Online Article Text |
id | pubmed-3937123 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-39371232014-02-28 Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation Killawi, Amal Khidir, Amal Elnashar, Maha Abdelrahim, Huda Hammoud, Maya Elliott, Heather Thurston, Michelle Asad, Humna Al-Khal, Abdul Latif Fetters, Michael D BMC Med Ethics Research Article BACKGROUND: Very few researchers have reported on procedures of recruiting, obtaining informed consent, and compensating participants in health research in the Arabian Gulf Region. Empirical research can inform the debate about whether to adjust these procedures for culturally diverse settings. Our objective was to delineate procedures related to recruiting, obtaining informed consent, and compensating health research participants in the extremely high-density multicultural setting of Qatar. METHODS: During a multistage mixed methods project, field observations and qualitative interviews were conducted in a general medicine clinic of a major medical center in Qatar. Participants were chosen based on gender, age, literacy, and preferred language, i.e., Arabic, English, Hindi and Urdu. Qualitative analysis identified themes about recruitment, informed consent, compensation, and other research procedures. RESULTS: A total of 153 individuals were approached and 84 enrolled; the latter showed a diverse age range (18 to 75 years); varied language representation: Arabic (n = 24), English (n = 20), Hindi (n = 20), and Urdu (n = 20); and balanced gender distribution: women (n = 43) and men (n = 41). Primary reasons for 30 declinations included concern about interview length and recording. The study achieved a 74% participation rate. Qualitative analytics revealed key themes about hesitation to participate, decisions about participation with family members as well as discussions with them as “incidental research participants”, the informed consent process, privacy and gender rules of the interview environment, reactions to member checking and compensation, and motivation for participating. Vulnerability emerged as a recurring issue throughout the process among a minority of participants. CONCLUSIONS: This study from Qatar is the first to provide empirical data on recruitment, informed consent, compensation and other research procedures in a general adult population in the Middle East and Arabian Gulf. This investigation illustrates how potential research participants perceive research participation. Fundamentally, Western ethical research principles were applicable, but required flexibility and culturally informed adaptations. BioMed Central 2014-02-04 /pmc/articles/PMC3937123/ /pubmed/24495499 http://dx.doi.org/10.1186/1472-6939-15-9 Text en Copyright © 2014 Killawi et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Article Killawi, Amal Khidir, Amal Elnashar, Maha Abdelrahim, Huda Hammoud, Maya Elliott, Heather Thurston, Michelle Asad, Humna Al-Khal, Abdul Latif Fetters, Michael D Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation |
title | Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation |
title_full | Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation |
title_fullStr | Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation |
title_full_unstemmed | Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation |
title_short | Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation |
title_sort | procedures of recruiting, obtaining informed consent, and compensating research participants in qatar: findings from a qualitative investigation |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3937123/ https://www.ncbi.nlm.nih.gov/pubmed/24495499 http://dx.doi.org/10.1186/1472-6939-15-9 |
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