Genomic data-sharing: what will be our legacy?

Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share wit...

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Detalles Bibliográficos
Autores principales: Callier, Shawneequa, Husain, Rajah, Simpson, Rachel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2014
Materias:
Genetics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3942643/
https://www.ncbi.nlm.nih.gov/pubmed/24634673
http://dx.doi.org/10.3389/fgene.2014.00034
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author Callier, Shawneequa
Husain, Rajah
Simpson, Rachel
author_facet Callier, Shawneequa
Husain, Rajah
Simpson, Rachel
author_sort Callier, Shawneequa
collection PubMed
description Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share with future generations. This has significant implications for the advancement of genomic science, and the public's perception of genomic research.
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spelling pubmed-39426432014-03-14 Genomic data-sharing: what will be our legacy? Callier, Shawneequa Husain, Rajah Simpson, Rachel Front Genet Genetics Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share with future generations. This has significant implications for the advancement of genomic science, and the public's perception of genomic research. Frontiers Media S.A. 2014-03-05 /pmc/articles/PMC3942643/ /pubmed/24634673 http://dx.doi.org/10.3389/fgene.2014.00034 Text en Copyright © 2014 Callier, Husain and Simpson. http://creativecommons.org/licenses/by/3.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Callier, Shawneequa
Husain, Rajah
Simpson, Rachel
Genomic data-sharing: what will be our legacy?
title Genomic data-sharing: what will be our legacy?
title_full Genomic data-sharing: what will be our legacy?
title_fullStr Genomic data-sharing: what will be our legacy?
title_full_unstemmed Genomic data-sharing: what will be our legacy?
title_short Genomic data-sharing: what will be our legacy?
title_sort genomic data-sharing: what will be our legacy?
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3942643/
https://www.ncbi.nlm.nih.gov/pubmed/24634673
http://dx.doi.org/10.3389/fgene.2014.00034
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