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Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden

Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mail...

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Autores principales: Svensson, Marianne, Fajutrao, Liberty
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3960744/
https://www.ncbi.nlm.nih.gov/pubmed/24729875
http://dx.doi.org/10.1155/2014/529878
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author Svensson, Marianne
Fajutrao, Liberty
author_facet Svensson, Marianne
Fajutrao, Liberty
author_sort Svensson, Marianne
collection PubMed
description Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mailed survey to a random sample of MS sufferers (n = 1500) collected data on the number of hours of home care received, type of help, productivity losses, quality of life, and disease characteristics. Costs for home care were estimated in 2012 € and factors that may influence the likelihood of getting home care were also evaluated. Formal care was given to 27% of the respondents (n = 839) at an average of 238.7 hrs/month at a mean monthly cost of €2873/person with MS. Informal care was received by 49% of the respondents at an average of 47.3 hrs/month at a mean monthly cost of €389/person with MS. Utilities across disease severity are as follows: mild MS = 0.709 (sd = 0.233), moderate MS = 0.562 (sd = 0.232), and severe MS = 0.284 (sd = 0.283). Total home care costs increased with increasing disease severity. Informal caregiving contributes significantly to MS home care in Sweden.
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spelling pubmed-39607442014-04-13 Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden Svensson, Marianne Fajutrao, Liberty Mult Scler Int Research Article Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mailed survey to a random sample of MS sufferers (n = 1500) collected data on the number of hours of home care received, type of help, productivity losses, quality of life, and disease characteristics. Costs for home care were estimated in 2012 € and factors that may influence the likelihood of getting home care were also evaluated. Formal care was given to 27% of the respondents (n = 839) at an average of 238.7 hrs/month at a mean monthly cost of €2873/person with MS. Informal care was received by 49% of the respondents at an average of 47.3 hrs/month at a mean monthly cost of €389/person with MS. Utilities across disease severity are as follows: mild MS = 0.709 (sd = 0.233), moderate MS = 0.562 (sd = 0.232), and severe MS = 0.284 (sd = 0.283). Total home care costs increased with increasing disease severity. Informal caregiving contributes significantly to MS home care in Sweden. Hindawi Publishing Corporation 2014 2014-03-04 /pmc/articles/PMC3960744/ /pubmed/24729875 http://dx.doi.org/10.1155/2014/529878 Text en Copyright © 2014 M. Svensson and L. Fajutrao. https://creativecommons.org/licenses/by/3.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Svensson, Marianne
Fajutrao, Liberty
Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
title Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
title_full Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
title_fullStr Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
title_full_unstemmed Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
title_short Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
title_sort costs of formal and informal home care and quality of life for patients with multiple sclerosis in sweden
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3960744/
https://www.ncbi.nlm.nih.gov/pubmed/24729875
http://dx.doi.org/10.1155/2014/529878
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