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Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden
Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mail...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Hindawi Publishing Corporation
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3960744/ https://www.ncbi.nlm.nih.gov/pubmed/24729875 http://dx.doi.org/10.1155/2014/529878 |
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author | Svensson, Marianne Fajutrao, Liberty |
author_facet | Svensson, Marianne Fajutrao, Liberty |
author_sort | Svensson, Marianne |
collection | PubMed |
description | Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mailed survey to a random sample of MS sufferers (n = 1500) collected data on the number of hours of home care received, type of help, productivity losses, quality of life, and disease characteristics. Costs for home care were estimated in 2012 € and factors that may influence the likelihood of getting home care were also evaluated. Formal care was given to 27% of the respondents (n = 839) at an average of 238.7 hrs/month at a mean monthly cost of €2873/person with MS. Informal care was received by 49% of the respondents at an average of 47.3 hrs/month at a mean monthly cost of €389/person with MS. Utilities across disease severity are as follows: mild MS = 0.709 (sd = 0.233), moderate MS = 0.562 (sd = 0.232), and severe MS = 0.284 (sd = 0.283). Total home care costs increased with increasing disease severity. Informal caregiving contributes significantly to MS home care in Sweden. |
format | Online Article Text |
id | pubmed-3960744 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | Hindawi Publishing Corporation |
record_format | MEDLINE/PubMed |
spelling | pubmed-39607442014-04-13 Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden Svensson, Marianne Fajutrao, Liberty Mult Scler Int Research Article Disease progression in multiple sclerosis leads to dramatic changes in a person's ability to perform daily activities and increases reliance on external help. This study aims to describe and to estimate costs of formal/informal home care and quality of life related to multiple sclerosis. A mailed survey to a random sample of MS sufferers (n = 1500) collected data on the number of hours of home care received, type of help, productivity losses, quality of life, and disease characteristics. Costs for home care were estimated in 2012 € and factors that may influence the likelihood of getting home care were also evaluated. Formal care was given to 27% of the respondents (n = 839) at an average of 238.7 hrs/month at a mean monthly cost of €2873/person with MS. Informal care was received by 49% of the respondents at an average of 47.3 hrs/month at a mean monthly cost of €389/person with MS. Utilities across disease severity are as follows: mild MS = 0.709 (sd = 0.233), moderate MS = 0.562 (sd = 0.232), and severe MS = 0.284 (sd = 0.283). Total home care costs increased with increasing disease severity. Informal caregiving contributes significantly to MS home care in Sweden. Hindawi Publishing Corporation 2014 2014-03-04 /pmc/articles/PMC3960744/ /pubmed/24729875 http://dx.doi.org/10.1155/2014/529878 Text en Copyright © 2014 M. Svensson and L. Fajutrao. https://creativecommons.org/licenses/by/3.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Article Svensson, Marianne Fajutrao, Liberty Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden |
title | Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden |
title_full | Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden |
title_fullStr | Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden |
title_full_unstemmed | Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden |
title_short | Costs of Formal and Informal Home Care and Quality of Life for Patients with Multiple Sclerosis in Sweden |
title_sort | costs of formal and informal home care and quality of life for patients with multiple sclerosis in sweden |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3960744/ https://www.ncbi.nlm.nih.gov/pubmed/24729875 http://dx.doi.org/10.1155/2014/529878 |
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