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Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease

INTRODUCTION: Research is underway to develop an early medical test for Alzheimer's disease (AD). METHODS: To evaluate potential demand for such a test, we conducted a cross-sectional telephone survey of 2,678 randomly selected adults across the United States and four European countries. RESULT...

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Detalles Bibliográficos
Autores principales: Wikler, Elizabeth M, Blendon, Robert J, Benson, John M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3978817/
https://www.ncbi.nlm.nih.gov/pubmed/24010759
http://dx.doi.org/10.1186/alzrt206
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author Wikler, Elizabeth M
Blendon, Robert J
Benson, John M
author_facet Wikler, Elizabeth M
Blendon, Robert J
Benson, John M
author_sort Wikler, Elizabeth M
collection PubMed
description INTRODUCTION: Research is underway to develop an early medical test for Alzheimer's disease (AD). METHODS: To evaluate potential demand for such a test, we conducted a cross-sectional telephone survey of 2,678 randomly selected adults across the United States and four European countries. RESULTS: Most surveyed adults (67%) reported that they are "somewhat" or "very likely" to get an early medical test if one becomes available in the future. Interest was higher among those worried about developing AD, those with an immediate blood relative with AD, and those who have served as caregivers for AD patients. Older respondents and those living in Spain and Poland also exhibited greater interest in testing. Knowing AD is a fatal condition did not influence demand for testing, except among those with an immediate blood relative with the disease. CONCLUSIONS: Potential demand for early medical testing for AD could be high. A predictive test could not only advance medical research, it could transform political and legal landscapes by creating a large constituency of asymptomatic, diagnosed adults.
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spelling pubmed-39788172014-04-09 Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease Wikler, Elizabeth M Blendon, Robert J Benson, John M Alzheimers Res Ther Research INTRODUCTION: Research is underway to develop an early medical test for Alzheimer's disease (AD). METHODS: To evaluate potential demand for such a test, we conducted a cross-sectional telephone survey of 2,678 randomly selected adults across the United States and four European countries. RESULTS: Most surveyed adults (67%) reported that they are "somewhat" or "very likely" to get an early medical test if one becomes available in the future. Interest was higher among those worried about developing AD, those with an immediate blood relative with AD, and those who have served as caregivers for AD patients. Older respondents and those living in Spain and Poland also exhibited greater interest in testing. Knowing AD is a fatal condition did not influence demand for testing, except among those with an immediate blood relative with the disease. CONCLUSIONS: Potential demand for early medical testing for AD could be high. A predictive test could not only advance medical research, it could transform political and legal landscapes by creating a large constituency of asymptomatic, diagnosed adults. BioMed Central 2013-09-06 /pmc/articles/PMC3978817/ /pubmed/24010759 http://dx.doi.org/10.1186/alzrt206 Text en Copyright © 2013 Wikler et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research
Wikler, Elizabeth M
Blendon, Robert J
Benson, John M
Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease
title Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease
title_full Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease
title_fullStr Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease
title_full_unstemmed Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease
title_short Would you want to know? Public attitudes on early diagnostic testing for Alzheimer's disease
title_sort would you want to know? public attitudes on early diagnostic testing for alzheimer's disease
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3978817/
https://www.ncbi.nlm.nih.gov/pubmed/24010759
http://dx.doi.org/10.1186/alzrt206
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