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Quality of Life and Congenital Heart Disease in Childhood and Adolescence

Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can...

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Autores principales: Bertoletti, Juliana, Marx, Giovana Caroline, Hattge, Sérgio Pedro, Pellanda, Lucia Campos
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Sociedade Brasileira de Cardiologia 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3987336/
https://www.ncbi.nlm.nih.gov/pubmed/24676375
http://dx.doi.org/10.5935/abc.20130244
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author Bertoletti, Juliana
Marx, Giovana Caroline
Hattge, Sérgio Pedro
Pellanda, Lucia Campos
author_facet Bertoletti, Juliana
Marx, Giovana Caroline
Hattge, Sérgio Pedro
Pellanda, Lucia Campos
author_sort Bertoletti, Juliana
collection PubMed
description Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can assist in decision making on the part of health professionals. Although many studies have been conducted to investigate the quality of life of children and adolescents with congenital heart disease, the results prove to be contradictory; while some studies show that congenital heart disease can impact the quality of life, others describe a better perception of quality of life among children and adolescents who suffer from the disease when compared with healthy control subjects. The purpose of this study is to review the literature on the assessment of health related quality of life in children and adolescents with congenital heart disease, in order to systematize the existing knowledge on this topic today. It is observed that research seeks to investigate aspects of personality in cardiac patients, their coping strategies used and perceived social support, aiming at better understanding the association of these variables with the level of quality of life in this population.
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spelling pubmed-39873362014-05-08 Quality of Life and Congenital Heart Disease in Childhood and Adolescence Bertoletti, Juliana Marx, Giovana Caroline Hattge, Sérgio Pedro Pellanda, Lucia Campos Arq Bras Cardiol Review Articles Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can assist in decision making on the part of health professionals. Although many studies have been conducted to investigate the quality of life of children and adolescents with congenital heart disease, the results prove to be contradictory; while some studies show that congenital heart disease can impact the quality of life, others describe a better perception of quality of life among children and adolescents who suffer from the disease when compared with healthy control subjects. The purpose of this study is to review the literature on the assessment of health related quality of life in children and adolescents with congenital heart disease, in order to systematize the existing knowledge on this topic today. It is observed that research seeks to investigate aspects of personality in cardiac patients, their coping strategies used and perceived social support, aiming at better understanding the association of these variables with the level of quality of life in this population. Sociedade Brasileira de Cardiologia 2014-02 /pmc/articles/PMC3987336/ /pubmed/24676375 http://dx.doi.org/10.5935/abc.20130244 Text en http://creativecommons.org/licenses/by-nc/3.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Articles
Bertoletti, Juliana
Marx, Giovana Caroline
Hattge, Sérgio Pedro
Pellanda, Lucia Campos
Quality of Life and Congenital Heart Disease in Childhood and Adolescence
title Quality of Life and Congenital Heart Disease in Childhood and Adolescence
title_full Quality of Life and Congenital Heart Disease in Childhood and Adolescence
title_fullStr Quality of Life and Congenital Heart Disease in Childhood and Adolescence
title_full_unstemmed Quality of Life and Congenital Heart Disease in Childhood and Adolescence
title_short Quality of Life and Congenital Heart Disease in Childhood and Adolescence
title_sort quality of life and congenital heart disease in childhood and adolescence
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3987336/
https://www.ncbi.nlm.nih.gov/pubmed/24676375
http://dx.doi.org/10.5935/abc.20130244
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