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Quality of Life and Congenital Heart Disease in Childhood and Adolescence
Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Sociedade Brasileira de Cardiologia
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3987336/ https://www.ncbi.nlm.nih.gov/pubmed/24676375 http://dx.doi.org/10.5935/abc.20130244 |
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author | Bertoletti, Juliana Marx, Giovana Caroline Hattge, Sérgio Pedro Pellanda, Lucia Campos |
author_facet | Bertoletti, Juliana Marx, Giovana Caroline Hattge, Sérgio Pedro Pellanda, Lucia Campos |
author_sort | Bertoletti, Juliana |
collection | PubMed |
description | Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can assist in decision making on the part of health professionals. Although many studies have been conducted to investigate the quality of life of children and adolescents with congenital heart disease, the results prove to be contradictory; while some studies show that congenital heart disease can impact the quality of life, others describe a better perception of quality of life among children and adolescents who suffer from the disease when compared with healthy control subjects. The purpose of this study is to review the literature on the assessment of health related quality of life in children and adolescents with congenital heart disease, in order to systematize the existing knowledge on this topic today. It is observed that research seeks to investigate aspects of personality in cardiac patients, their coping strategies used and perceived social support, aiming at better understanding the association of these variables with the level of quality of life in this population. |
format | Online Article Text |
id | pubmed-3987336 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | Sociedade Brasileira de Cardiologia |
record_format | MEDLINE/PubMed |
spelling | pubmed-39873362014-05-08 Quality of Life and Congenital Heart Disease in Childhood and Adolescence Bertoletti, Juliana Marx, Giovana Caroline Hattge, Sérgio Pedro Pellanda, Lucia Campos Arq Bras Cardiol Review Articles Advances in cardiac surgery techniques and early diagnosis have enabled the increased survival of individuals with congenital heart disease. The investigation of the quality of life in children and adolescents with congenital heart disease provides complementary information to clinical data that can assist in decision making on the part of health professionals. Although many studies have been conducted to investigate the quality of life of children and adolescents with congenital heart disease, the results prove to be contradictory; while some studies show that congenital heart disease can impact the quality of life, others describe a better perception of quality of life among children and adolescents who suffer from the disease when compared with healthy control subjects. The purpose of this study is to review the literature on the assessment of health related quality of life in children and adolescents with congenital heart disease, in order to systematize the existing knowledge on this topic today. It is observed that research seeks to investigate aspects of personality in cardiac patients, their coping strategies used and perceived social support, aiming at better understanding the association of these variables with the level of quality of life in this population. Sociedade Brasileira de Cardiologia 2014-02 /pmc/articles/PMC3987336/ /pubmed/24676375 http://dx.doi.org/10.5935/abc.20130244 Text en http://creativecommons.org/licenses/by-nc/3.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Review Articles Bertoletti, Juliana Marx, Giovana Caroline Hattge, Sérgio Pedro Pellanda, Lucia Campos Quality of Life and Congenital Heart Disease in Childhood and Adolescence |
title | Quality of Life and Congenital Heart Disease in Childhood and
Adolescence |
title_full | Quality of Life and Congenital Heart Disease in Childhood and
Adolescence |
title_fullStr | Quality of Life and Congenital Heart Disease in Childhood and
Adolescence |
title_full_unstemmed | Quality of Life and Congenital Heart Disease in Childhood and
Adolescence |
title_short | Quality of Life and Congenital Heart Disease in Childhood and
Adolescence |
title_sort | quality of life and congenital heart disease in childhood and
adolescence |
topic | Review Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3987336/ https://www.ncbi.nlm.nih.gov/pubmed/24676375 http://dx.doi.org/10.5935/abc.20130244 |
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