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Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature

BACKGROUND: Patients are increasingly expected and asked to be involved in health care decisions. In this decision-making process, preferences for participation are important. In this systematic review we aim to provide an overview the literature related to the congruence between patients’ preferenc...

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Autores principales: Brom, Linda, Hopmans, Wendy, Pasman, H Roeline W, Timmermans, Danielle RM, Widdershoven, Guy AM, Onwuteaka-Philipsen, Bregje D
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3992143/
https://www.ncbi.nlm.nih.gov/pubmed/24708833
http://dx.doi.org/10.1186/1472-6947-14-25
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author Brom, Linda
Hopmans, Wendy
Pasman, H Roeline W
Timmermans, Danielle RM
Widdershoven, Guy AM
Onwuteaka-Philipsen, Bregje D
author_facet Brom, Linda
Hopmans, Wendy
Pasman, H Roeline W
Timmermans, Danielle RM
Widdershoven, Guy AM
Onwuteaka-Philipsen, Bregje D
author_sort Brom, Linda
collection PubMed
description BACKGROUND: Patients are increasingly expected and asked to be involved in health care decisions. In this decision-making process, preferences for participation are important. In this systematic review we aim to provide an overview the literature related to the congruence between patients’ preferences and their perceived participation in medical decision-making. We also explore the direction of mismatched and outline factors associated with congruence. METHODS: A systematic review was performed on patient participation in medical decision-making. Medline, PsycINFO, CINAHL, EMBASE and the Cochrane Library databases up to September 2012, were searched and all studies were rigorously critically appraised. In total 44 papers were included, they sampled contained 52 different patient samples. RESULTS: Mean of congruence between preference for and perceived participation in decision-making was 60% (49 and 70 representing 25(th) and 75(th) percentiles). If no congruence was found, of 36 patient samples most patients preferred more involvement and of 9 patient samples most patients preferred less involvement. Factors associated with preferences the most investigated were age and educational level. Younger patients preferred more often an active or shared role as did higher educated patients. CONCLUSION: This review suggests that a similar approach to all patients is not likely to meet patients’ wishes, since preferences for participation vary among patients. Health care professionals should be sensitive to patients individual preferences and communicate about patients’ participation wishes on a regular basis during their illness trajectory.
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spelling pubmed-39921432014-04-20 Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature Brom, Linda Hopmans, Wendy Pasman, H Roeline W Timmermans, Danielle RM Widdershoven, Guy AM Onwuteaka-Philipsen, Bregje D BMC Med Inform Decis Mak Research Article BACKGROUND: Patients are increasingly expected and asked to be involved in health care decisions. In this decision-making process, preferences for participation are important. In this systematic review we aim to provide an overview the literature related to the congruence between patients’ preferences and their perceived participation in medical decision-making. We also explore the direction of mismatched and outline factors associated with congruence. METHODS: A systematic review was performed on patient participation in medical decision-making. Medline, PsycINFO, CINAHL, EMBASE and the Cochrane Library databases up to September 2012, were searched and all studies were rigorously critically appraised. In total 44 papers were included, they sampled contained 52 different patient samples. RESULTS: Mean of congruence between preference for and perceived participation in decision-making was 60% (49 and 70 representing 25(th) and 75(th) percentiles). If no congruence was found, of 36 patient samples most patients preferred more involvement and of 9 patient samples most patients preferred less involvement. Factors associated with preferences the most investigated were age and educational level. Younger patients preferred more often an active or shared role as did higher educated patients. CONCLUSION: This review suggests that a similar approach to all patients is not likely to meet patients’ wishes, since preferences for participation vary among patients. Health care professionals should be sensitive to patients individual preferences and communicate about patients’ participation wishes on a regular basis during their illness trajectory. BioMed Central 2014-04-03 /pmc/articles/PMC3992143/ /pubmed/24708833 http://dx.doi.org/10.1186/1472-6947-14-25 Text en Copyright © 2014 Brom et al.; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/2.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited.
spellingShingle Research Article
Brom, Linda
Hopmans, Wendy
Pasman, H Roeline W
Timmermans, Danielle RM
Widdershoven, Guy AM
Onwuteaka-Philipsen, Bregje D
Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
title Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
title_full Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
title_fullStr Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
title_full_unstemmed Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
title_short Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
title_sort congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3992143/
https://www.ncbi.nlm.nih.gov/pubmed/24708833
http://dx.doi.org/10.1186/1472-6947-14-25
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