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Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach

INTRODUCTION: The Zuni Pueblo, in collaboration with the University of New Mexico, have formed the Zuni Health Initiative (ZHI) engaged in community-based participatory research to plan and implement educational interventions to reduce health disparities. We conducted the first phase of ZHI study an...

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Autores principales: Newman, Sara, Cheng, Terri, Ghahate, Donica M., Bobelu, Jeanette, Sandy, Phillip, Faber, Thomas, Shah, Vallabh O.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4053347/
https://www.ncbi.nlm.nih.gov/pubmed/24919064
http://dx.doi.org/10.1371/journal.pone.0099614
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author Newman, Sara
Cheng, Terri
Ghahate, Donica M.
Bobelu, Jeanette
Sandy, Phillip
Faber, Thomas
Shah, Vallabh O.
author_facet Newman, Sara
Cheng, Terri
Ghahate, Donica M.
Bobelu, Jeanette
Sandy, Phillip
Faber, Thomas
Shah, Vallabh O.
author_sort Newman, Sara
collection PubMed
description INTRODUCTION: The Zuni Pueblo, in collaboration with the University of New Mexico, have formed the Zuni Health Initiative (ZHI) engaged in community-based participatory research to plan and implement educational interventions to reduce health disparities. We conducted the first phase of ZHI study and identified barriers to healthcare. We concluded that the burden presented by these barriers ultimately translates into a lack of patient activation and engagement in their health care including for diabetes, effectively hindering adoption of healthy behaviors. METHODS: Community health representatives (CHRs) led 10 one-hour focus group sessions to elicit information on diabetes knowledge and self-management strategies at which a total of 84 people participated. Audiotapes were translated and transcribed by bilingual ZHI staff. We reduced the text to thematic categories, constructed a coding dictionary and inserted the text into NVivo 9 program. RESULTS: The focus groups revealed that despite extensive personal or family experiences with diabetes or complications, participants identified knowledge gaps in the disease progression and disease management. However, we gained insight into how many Zunis conceptualize the etiology of diabetes, risk factors associated with diabetes, sources of knowledge and self-management practices. CONCLUSION: We concluded that many of the Zuni diabetics experience significant impacts on their life when they were diagnosed with diabetes and suffered the plight of stigmatization. We further concluded that developing Zuni culture specific diabetes care should focus on family involvement with continued education.
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spelling pubmed-40533472014-06-18 Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach Newman, Sara Cheng, Terri Ghahate, Donica M. Bobelu, Jeanette Sandy, Phillip Faber, Thomas Shah, Vallabh O. PLoS One Research Article INTRODUCTION: The Zuni Pueblo, in collaboration with the University of New Mexico, have formed the Zuni Health Initiative (ZHI) engaged in community-based participatory research to plan and implement educational interventions to reduce health disparities. We conducted the first phase of ZHI study and identified barriers to healthcare. We concluded that the burden presented by these barriers ultimately translates into a lack of patient activation and engagement in their health care including for diabetes, effectively hindering adoption of healthy behaviors. METHODS: Community health representatives (CHRs) led 10 one-hour focus group sessions to elicit information on diabetes knowledge and self-management strategies at which a total of 84 people participated. Audiotapes were translated and transcribed by bilingual ZHI staff. We reduced the text to thematic categories, constructed a coding dictionary and inserted the text into NVivo 9 program. RESULTS: The focus groups revealed that despite extensive personal or family experiences with diabetes or complications, participants identified knowledge gaps in the disease progression and disease management. However, we gained insight into how many Zunis conceptualize the etiology of diabetes, risk factors associated with diabetes, sources of knowledge and self-management practices. CONCLUSION: We concluded that many of the Zuni diabetics experience significant impacts on their life when they were diagnosed with diabetes and suffered the plight of stigmatization. We further concluded that developing Zuni culture specific diabetes care should focus on family involvement with continued education. Public Library of Science 2014-06-11 /pmc/articles/PMC4053347/ /pubmed/24919064 http://dx.doi.org/10.1371/journal.pone.0099614 Text en © 2014 Newman et al http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are properly credited.
spellingShingle Research Article
Newman, Sara
Cheng, Terri
Ghahate, Donica M.
Bobelu, Jeanette
Sandy, Phillip
Faber, Thomas
Shah, Vallabh O.
Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach
title Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach
title_full Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach
title_fullStr Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach
title_full_unstemmed Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach
title_short Assessing Knowledge and Attitudes of Diabetes in Zuni Indians Using a Culture-Centered Approach
title_sort assessing knowledge and attitudes of diabetes in zuni indians using a culture-centered approach
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4053347/
https://www.ncbi.nlm.nih.gov/pubmed/24919064
http://dx.doi.org/10.1371/journal.pone.0099614
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