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ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective

BACKGROUND: Many patients share their personal experiences and opinions using online video platforms. These videos are watched by millions of health consumers and health care professionals. Although it has become a popular phenomenon, little is known about patients who share videos online and why th...

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Detalles Bibliográficos
Autores principales: Gómez-Zúñiga, Beni, Fernandez-Luque, Luis, Pousada, Modesta, Hernández-Encuentra, Eulàlia, Armayones, Manuel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Gunther Eysenbach 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4084771/
https://www.ncbi.nlm.nih.gov/pubmed/25075229
http://dx.doi.org/10.2196/med2.2039
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author Gómez-Zúñiga, Beni
Fernandez-Luque, Luis
Pousada, Modesta
Hernández-Encuentra, Eulàlia
Armayones, Manuel
author_facet Gómez-Zúñiga, Beni
Fernandez-Luque, Luis
Pousada, Modesta
Hernández-Encuentra, Eulàlia
Armayones, Manuel
author_sort Gómez-Zúñiga, Beni
collection PubMed
description BACKGROUND: Many patients share their personal experiences and opinions using online video platforms. These videos are watched by millions of health consumers and health care professionals. Although it has become a popular phenomenon, little is known about patients who share videos online and why they do so. OBJECTIVE: We aimed to explore the motivations and challenges faced by patients who share videos about their health and experiences on YouTube. As part of a conference discussion, we asked several patients actively engaged on YouTube to make a video explaining their motivations. This paper discusses these videos. METHODS: In this qualitative study, we performed an analysis of the videos created by 4 patients about their self-reported motivations and challenges they face as YouTube users. First, two judges compared the transcriptions and decided the exact wording when confusing content was found. Second, two judges categorized the content of the videos to identify the major themes. RESULTS: Four main categories emerged: (1) the origin or cause for making the first video, (2) the objectives that they achieve by continuing to make videos, (3) the perception of community, and (4) the negative consequences of the experience. CONCLUSIONS: The main reason for making videos was to bridge the gap between traditional health information about their diseases and everyday life. The first consequence of sharing their life on YouTube was a loss of privacy. However, they also experienced the positive effects of expressing their feelings, being part of a large community of peers, and helping others to deal with a chronic condition.
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spelling pubmed-40847712014-07-29 ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective Gómez-Zúñiga, Beni Fernandez-Luque, Luis Pousada, Modesta Hernández-Encuentra, Eulàlia Armayones, Manuel Med 2 0 Original Paper BACKGROUND: Many patients share their personal experiences and opinions using online video platforms. These videos are watched by millions of health consumers and health care professionals. Although it has become a popular phenomenon, little is known about patients who share videos online and why they do so. OBJECTIVE: We aimed to explore the motivations and challenges faced by patients who share videos about their health and experiences on YouTube. As part of a conference discussion, we asked several patients actively engaged on YouTube to make a video explaining their motivations. This paper discusses these videos. METHODS: In this qualitative study, we performed an analysis of the videos created by 4 patients about their self-reported motivations and challenges they face as YouTube users. First, two judges compared the transcriptions and decided the exact wording when confusing content was found. Second, two judges categorized the content of the videos to identify the major themes. RESULTS: Four main categories emerged: (1) the origin or cause for making the first video, (2) the objectives that they achieve by continuing to make videos, (3) the perception of community, and (4) the negative consequences of the experience. CONCLUSIONS: The main reason for making videos was to bridge the gap between traditional health information about their diseases and everyday life. The first consequence of sharing their life on YouTube was a loss of privacy. However, they also experienced the positive effects of expressing their feelings, being part of a large community of peers, and helping others to deal with a chronic condition. Gunther Eysenbach 2012-04-25 /pmc/articles/PMC4084771/ /pubmed/25075229 http://dx.doi.org/10.2196/med2.2039 Text en ©Beni Gómez-Zúñiga, Luis Fernandez-Luque, Modesta Pousada, Eulàlia Hernández-Encuentra, Manuel Armayones. Originally published in Medicine 2.0 (http://www.medicine20.com), 25.04.2012. http://creativecommons.org/licenses/by/2.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in Medicine 2.0, is properly cited. The complete bibliographic information, a link to the original publication on http://www.medicine20.com/, as well as this copyright and license information must be included.
spellingShingle Original Paper
Gómez-Zúñiga, Beni
Fernandez-Luque, Luis
Pousada, Modesta
Hernández-Encuentra, Eulàlia
Armayones, Manuel
ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
title ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
title_full ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
title_fullStr ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
title_full_unstemmed ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
title_short ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective
title_sort epatients on youtube: analysis of four experiences from the patients' perspective
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4084771/
https://www.ncbi.nlm.nih.gov/pubmed/25075229
http://dx.doi.org/10.2196/med2.2039
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