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Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study

Objective: The aim of this longitudinal study was to identify predictors of instantaneous well-being in patients with amyotrophic lateral sclerosis (ALS). Based on flow theory well-being was expected to be highest when perceived demands and perceived control were in balance, and that thinking about...

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Autores principales: Real, Ruben G. L., Dickhaus, Thorsten, Ludolph, Albert, Hautzinger, Martin, Kübler, Andrea
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4085718/
https://www.ncbi.nlm.nih.gov/pubmed/25071670
http://dx.doi.org/10.3389/fpsyg.2014.00704
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author Real, Ruben G. L.
Dickhaus, Thorsten
Ludolph, Albert
Hautzinger, Martin
Kübler, Andrea
author_facet Real, Ruben G. L.
Dickhaus, Thorsten
Ludolph, Albert
Hautzinger, Martin
Kübler, Andrea
author_sort Real, Ruben G. L.
collection PubMed
description Objective: The aim of this longitudinal study was to identify predictors of instantaneous well-being in patients with amyotrophic lateral sclerosis (ALS). Based on flow theory well-being was expected to be highest when perceived demands and perceived control were in balance, and that thinking about the past would be a risk factor for rumination which would in turn reduce well-being. Methods: Using the experience sampling method, data on current activities, associated aspects of perceived demands, control, and well-being were collected from 10 patients with ALS three times a day for two weeks. Results: Results show that perceived control was uniformly and positively associated with well-being, but that demands were only positively associated with well-being when they were perceived as controllable. Mediation analysis confirmed thinking about the past, but not thinking about the future, to be a risk factor for rumination and reduced well-being. Discussion: Findings extend our knowledge of factors contributing to well-being in ALS as not only perceived control but also perceived demands can contribute to well-being. They further show that a focus on present experiences might contribute to increased well-being.
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spelling pubmed-40857182014-07-28 Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study Real, Ruben G. L. Dickhaus, Thorsten Ludolph, Albert Hautzinger, Martin Kübler, Andrea Front Psychol Psychology Objective: The aim of this longitudinal study was to identify predictors of instantaneous well-being in patients with amyotrophic lateral sclerosis (ALS). Based on flow theory well-being was expected to be highest when perceived demands and perceived control were in balance, and that thinking about the past would be a risk factor for rumination which would in turn reduce well-being. Methods: Using the experience sampling method, data on current activities, associated aspects of perceived demands, control, and well-being were collected from 10 patients with ALS three times a day for two weeks. Results: Results show that perceived control was uniformly and positively associated with well-being, but that demands were only positively associated with well-being when they were perceived as controllable. Mediation analysis confirmed thinking about the past, but not thinking about the future, to be a risk factor for rumination and reduced well-being. Discussion: Findings extend our knowledge of factors contributing to well-being in ALS as not only perceived control but also perceived demands can contribute to well-being. They further show that a focus on present experiences might contribute to increased well-being. Frontiers Media S.A. 2014-07-08 /pmc/articles/PMC4085718/ /pubmed/25071670 http://dx.doi.org/10.3389/fpsyg.2014.00704 Text en Copyright © 2014 Real, Dickhaus, Ludolph, Hautzinger and Kübler. http://creativecommons.org/licenses/by/3.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Psychology
Real, Ruben G. L.
Dickhaus, Thorsten
Ludolph, Albert
Hautzinger, Martin
Kübler, Andrea
Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
title Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
title_full Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
title_fullStr Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
title_full_unstemmed Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
title_short Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
title_sort well-being in amyotrophic lateral sclerosis: a pilot experience sampling study
topic Psychology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4085718/
https://www.ncbi.nlm.nih.gov/pubmed/25071670
http://dx.doi.org/10.3389/fpsyg.2014.00704
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