Cargando…

Developing a provisional, international Minimal Dataset for Juvenile Dermatomyositis: for use in clinical practice to inform research

BACKGROUND: Juvenile dermatomyositis (JDM) is a rare but severe autoimmune inflammatory myositis of childhood. International collaboration is essential in order to undertake clinical trials, understand the disease and improve long-term outcome. The aim of this study was to propose from existing coll...

Descripción completa

Detalles Bibliográficos
Autores principales:	McCann, Liza J, Arnold, Katie, Pilkington, Clarissa A, Huber, Adam M, Ravelli, Angelo, Beard, Laura, Beresford, Michael W, Wedderburn, Lucy R
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2014
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4113599/ https://www.ncbi.nlm.nih.gov/pubmed/25075205 http://dx.doi.org/10.1186/1546-0096-12-31

Ejemplares similares

Proposal for the development of an international minimal data collection for juvenile dermatomyositis (JDM)
por: McCann, Liza J, et al.
Publicado: (2011)

Development of an internationally agreed minimal dataset for juvenile dermatomyositis (JDM) for clinical and research use
por: McCann, Liza J., et al.
Publicado: (2015)

Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research
por: McCann, Liza J, et al.
Publicado: (2018)

The PRINTO provisional definition of remission in juvenile dermatomyositis
por: Lazarevic, D, et al.
Publicado: (2011)

Clinically inactive disease in juvenile dermatomyositis – a proposed revision to the printo criteria
por: Almeida, Beverley, et al.
Publicado: (2014)

Consensus-based recommendations for the management of juvenile dermatomyositis
por: Enders, Felicitas Bellutti, et al.
Publicado: (2017)

The Vasculopathy of Juvenile Dermatomyositis
por: Papadopoulou, Charalampia, et al.
Publicado: (2018)

Mapping the current psychology provision for children and young people with juvenile dermatomyositis
por: Livermore, Polly, et al.
Publicado: (2021)

Comparison of the utility and validity of three scoring tools to detect skin disease in patients with juvenile dermatomyositis
por: Campanilho-Marques, Raquel, et al.
Publicado: (2014)

SHARE – workpackage 5: evidence based recommendations for diagnosis and treatment of juvenile dermatomyositis
por: Enders, Felicitas Bellutti, et al.
Publicado: (2014)

Tubuloreticular inclusions in juvenile dermatomyositis: a diagnostically useful marker?
por: Yasin, Shireena A, et al.
Publicado: (2014)

Sub-phenotyping of juvenile dermatomyositis: can it assist clinical decisions?
por: Yasin, Shireena A, et al.
Publicado: (2014)

Comparison of Children With Onset of Juvenile Dermatomyositis Symptoms Before or After Their Fifth Birthday in a UK and Ireland Juvenile Dermatomyositis Cohort Study
por: Martin, N, et al.
Publicado: (2012)

Identification and prediction of novel classes of long-term disease trajectories for patients with juvenile dermatomyositis using growth mixture models
por: Deakin, Claire T, et al.
Publicado: (2020)

Retrospective analysis of infliximab and adalimumab treatment in a large cohort of juvenile dermatomyositis patients
por: Campanilho-Marques, Raquel, et al.
Publicado: (2020)

A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies
por: Martin, Neil, et al.
Publicado: (2011)

Efficacy and Safety of Cyclophosphamide Treatment in Severe Juvenile Dermatomyositis Shown by Marginal Structural Modeling
por: Deakin, Claire T., et al.
Publicado: (2018)

Regulatory B cell Il-10 production is diminished in juvenile dermatomyositis
por: Piper, Christopher, et al.
Publicado: (2014)

Juvenile Dermatomyositis: what comes next? Long-term outcomes in childhood myositis from a patient perspective
por: Boros, C., et al.
Publicado: (2022)

Anti-MDA5 autoantibodies in juvenile dermatomyositis identify a distinct clinical phenotype: a prospective cohort study
por: Tansley, Sarah L, et al.
Publicado: (2014)

PReS-FINAL-2130-A: Effectiveness of intravenous cyclophosphamide in severe or refractory juvenile dermatomyositis - a national cohort study UK and Ireland
por: Moraitis, E, et al.
Publicado: (2013)

PReS-FINAL-2012: Introducing a new approach to clinical care of juvenile dermatomyositis: the juvenile dermatomyositis multidimensional assessment report
por: Varnier, GC, et al.
Publicado: (2013)

Comparison of data from the juvenile dermatomyositis national (UK & Ireland) cohort biomarker study and repository for idiopathic inflammatory myopathies with a survey of current practice throughout the UK and Ireland
por: Martin, N, et al.
Publicado: (2011)

Being on the juvenile dermatomyositis rollercoaster: a qualitative study
por: Livermore, Polly, et al.
Publicado: (2019)

Effectiveness of anti-TNF-α agents in the treatment of refractory juvenile dermatomyositis
por: Boulter, EL, et al.
Publicado: (2011)

Calcinosis in juvenile dermatomyositis is influenced by both anti-NXP2 autoantibody status and age at disease onset
por: Tansley, Sarah L., et al.
Publicado: (2014)

Juvenile idiopathic inflammatory myositis: an update on pathophysiology and clinical care
por: Papadopoulou, Charalampia, et al.
Publicado: (2023)

Maternal microchimerism in muscle biopsies from children with juvenile dermatomyositis
por: Ye, Yi, et al.
Publicado: (2012)

Methotrexate polyglutamates as a potential marker of adherence to long-term therapy in children with juvenile idiopathic arthritis and juvenile dermatomyositis: an observational, cross-sectional study
por: Hawwa, Ahmed F., et al.
Publicado: (2015)

Comparison of the Utility and Validity of Three Scoring Tools to Measure Skin Involvement in Patients With Juvenile Dermatomyositis
por: Campanilho‐Marques, Raquel, et al.
Publicado: (2016)

Systemic and Tissue Inflammation in Juvenile Dermatomyositis: From Pathogenesis to the Quest for Monitoring Tools
por: Wienke, Judith, et al.
Publicado: (2018)

Analysis of Published Criteria for Clinically Inactive Disease in a Large Juvenile Dermatomyositis Cohort Shows That Skin Disease Is Underestimated
por: Almeida, Beverley, et al.
Publicado: (2015)

Adult and juvenile dermatomyositis: are the distinct clinical features explained by our current understanding of serological subgroups and pathogenic mechanisms?
por: Tansley, Sarah L, et al.
Publicado: (2013)

Juvenile Dermatomyositis
por: Rhim, Jung Woo
Publicado: (2022)

Myeloid related protein induces muscle derived inflammatory mediators in juvenile dermatomyositis
por: Nistala, Kiran, et al.
Publicado: (2013)

PReS-FINAL-1020: Dysregulation of the peripheral blood D cell compartment is associated with disease activity in juvenile dermatomyositis
por: Piper, C, et al.
Publicado: (2013)

Anti–Cytosolic 5′‐Nucleotidase 1A Autoantibodies Are Absent in Juvenile Dermatomyositis
por: Rietveld, Anke, et al.
Publicado: (2021)

What is the mortality of Juvenile Dermatomyositis (JDM) in the modern treatment era
por: Smith, S, et al.
Publicado: (2008)

Validation of a score tool for measurement of histological severity in juvenile dermatomyositis and association with clinical severity of disease
por: Varsani, Hemlata, et al.
Publicado: (2015)

Juvenile Dermatomyositis in Pregnancy
por: Madu, Anthony Emeka, et al.
Publicado: (2013)

Cannot write session to /tmp/vufind_sessions/sess_j1jfjogbkg0pn5efv3fv3trc0l