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Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin

OBJECTIVE: Percutaneous pulmonary valve implantation is an alternative to open heart surgery in selected patients with pulmonary outflow tract disorder. The technique may reduce the number of open-chest surgeries in these patients. This study was conducted to understand how the patients and their ne...

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Autores principales: Andresen, Brith, Andersen, Marit Helen, Lindberg, Harald, Døhlen, Gaute, Fosse, Erik
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4120422/
https://www.ncbi.nlm.nih.gov/pubmed/25079930
http://dx.doi.org/10.1136/bmjopen-2014-005102
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author Andresen, Brith
Andersen, Marit Helen
Lindberg, Harald
Døhlen, Gaute
Fosse, Erik
author_facet Andresen, Brith
Andersen, Marit Helen
Lindberg, Harald
Døhlen, Gaute
Fosse, Erik
author_sort Andresen, Brith
collection PubMed
description OBJECTIVE: Percutaneous pulmonary valve implantation is an alternative to open heart surgery in selected patients with pulmonary outflow tract disorder. The technique may reduce the number of open-chest surgeries in these patients. This study was conducted to understand how the patients and their next-of-kin experienced this new treatment option. DESIGN: Qualitative explorative design with individual in-depth interviews. SETTING: Oslo University Hospital, the only cardiac centre in Norway offering advanced surgical and interventional treatment to patient with congenital heart defects, serving the whole Norwegian population. PARTICIPANTS: During a 2-year period a total of 10 patients, median age 17 (7–30) and 18 next-of-kin were consecutively selected for individual in-depth interviews 3–6 months after the pulmonary valve implantation. The verbatim transcripts were analysed using a phenomenological methodology. RESULTS: Patients emphasised the importance of regaining independence and taking control of daily life shortly after the new interventional treatment. Renewed hope towards treatment options was described as ‘a light in the tunnel’. Next-of-kin emphasised the importance both for the patient and their family of resuming normal life quickly after the procedure. The physical burden was experienced as minor after the minimally invasive intervention, compared to their previous experience with surgical procedures. MAIN OUTCOME MEASURE: The importance of maintaining normality in everyday life for a good family function. CONCLUSIONS: The repeated surgeries during infancy and adolescence of patients with congenital heart disease represent a heavy burden both for the patient and their family. All families especially emphasised the importance of resuming normal life quickly after each procedure. The novel technique of pulmonary valve implantation is thus a favourable approach because of minor interference in daily life.
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spelling pubmed-41204222014-08-05 Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin Andresen, Brith Andersen, Marit Helen Lindberg, Harald Døhlen, Gaute Fosse, Erik BMJ Open Qualitative Research OBJECTIVE: Percutaneous pulmonary valve implantation is an alternative to open heart surgery in selected patients with pulmonary outflow tract disorder. The technique may reduce the number of open-chest surgeries in these patients. This study was conducted to understand how the patients and their next-of-kin experienced this new treatment option. DESIGN: Qualitative explorative design with individual in-depth interviews. SETTING: Oslo University Hospital, the only cardiac centre in Norway offering advanced surgical and interventional treatment to patient with congenital heart defects, serving the whole Norwegian population. PARTICIPANTS: During a 2-year period a total of 10 patients, median age 17 (7–30) and 18 next-of-kin were consecutively selected for individual in-depth interviews 3–6 months after the pulmonary valve implantation. The verbatim transcripts were analysed using a phenomenological methodology. RESULTS: Patients emphasised the importance of regaining independence and taking control of daily life shortly after the new interventional treatment. Renewed hope towards treatment options was described as ‘a light in the tunnel’. Next-of-kin emphasised the importance both for the patient and their family of resuming normal life quickly after the procedure. The physical burden was experienced as minor after the minimally invasive intervention, compared to their previous experience with surgical procedures. MAIN OUTCOME MEASURE: The importance of maintaining normality in everyday life for a good family function. CONCLUSIONS: The repeated surgeries during infancy and adolescence of patients with congenital heart disease represent a heavy burden both for the patient and their family. All families especially emphasised the importance of resuming normal life quickly after each procedure. The novel technique of pulmonary valve implantation is thus a favourable approach because of minor interference in daily life. BMJ Publishing Group 2014-07-29 /pmc/articles/PMC4120422/ /pubmed/25079930 http://dx.doi.org/10.1136/bmjopen-2014-005102 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/
spellingShingle Qualitative Research
Andresen, Brith
Andersen, Marit Helen
Lindberg, Harald
Døhlen, Gaute
Fosse, Erik
Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
title Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
title_full Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
title_fullStr Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
title_full_unstemmed Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
title_short Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
title_sort perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin
topic Qualitative Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4120422/
https://www.ncbi.nlm.nih.gov/pubmed/25079930
http://dx.doi.org/10.1136/bmjopen-2014-005102
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