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Newspaper coverage of biobanks

Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns. Although there have been studies examining the views of different stakeholders, such...

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Autores principales: Ogbogu, Ubaka, Toews, Maeghan, Ollenberger, Adam, Borry, Pascal, Nobile, Helene, Bergmann, Manuela, Caulfield, Timothy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: PeerJ Inc. 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4121587/
https://www.ncbi.nlm.nih.gov/pubmed/25101229
http://dx.doi.org/10.7717/peerj.500
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author Ogbogu, Ubaka
Toews, Maeghan
Ollenberger, Adam
Borry, Pascal
Nobile, Helene
Bergmann, Manuela
Caulfield, Timothy
author_facet Ogbogu, Ubaka
Toews, Maeghan
Ollenberger, Adam
Borry, Pascal
Nobile, Helene
Bergmann, Manuela
Caulfield, Timothy
author_sort Ogbogu, Ubaka
collection PubMed
description Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns. Although there have been studies examining the views of different stakeholders, such as donors, researchers and the general public, the media portrayal of biobanks has been absent from this body of research. This study therefore examines how biobanking has been represented in major print newspapers from Australia, Canada, the United Kingdom and the United States to identify the issues and concerns surrounding biobanks that have featured most prominently in the print media discourse. Methods. Using Factiva, articles published in major broadsheet newspapers in Canada, the US, the UK, and Australia were identified using specified search terms. The final sample size consisted of 163 articles. Results. Majority of articles mentioned or discussed the benefits of biobanking, with medical research being the most prevalent benefit mentioned. Fewer articles discussed risks associated with biobanking. Researchers were the group of people most quoted in the articles, followed by biobank employees. Biobanking was portrayed as mostly neutral or positive, with few articles portraying biobanking in a negative manner. Conclusion. Reporting on biobanks in the print media heavily favours discussions of related benefits over risks. Members of the scientific research community appear to be a primary source of this positive tone. Under-reporting of risks and a downtrend in reporting on legal and regulatory issues suggests that the print media views such matters as less newsworthy than perceived benefits of biobanking.
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spelling pubmed-41215872014-08-06 Newspaper coverage of biobanks Ogbogu, Ubaka Toews, Maeghan Ollenberger, Adam Borry, Pascal Nobile, Helene Bergmann, Manuela Caulfield, Timothy PeerJ Ethical Issues Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns. Although there have been studies examining the views of different stakeholders, such as donors, researchers and the general public, the media portrayal of biobanks has been absent from this body of research. This study therefore examines how biobanking has been represented in major print newspapers from Australia, Canada, the United Kingdom and the United States to identify the issues and concerns surrounding biobanks that have featured most prominently in the print media discourse. Methods. Using Factiva, articles published in major broadsheet newspapers in Canada, the US, the UK, and Australia were identified using specified search terms. The final sample size consisted of 163 articles. Results. Majority of articles mentioned or discussed the benefits of biobanking, with medical research being the most prevalent benefit mentioned. Fewer articles discussed risks associated with biobanking. Researchers were the group of people most quoted in the articles, followed by biobank employees. Biobanking was portrayed as mostly neutral or positive, with few articles portraying biobanking in a negative manner. Conclusion. Reporting on biobanks in the print media heavily favours discussions of related benefits over risks. Members of the scientific research community appear to be a primary source of this positive tone. Under-reporting of risks and a downtrend in reporting on legal and regulatory issues suggests that the print media views such matters as less newsworthy than perceived benefits of biobanking. PeerJ Inc. 2014-07-31 /pmc/articles/PMC4121587/ /pubmed/25101229 http://dx.doi.org/10.7717/peerj.500 Text en © 2014 Ogbogu et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, reproduction and adaptation in any medium and for any purpose provided that it is properly attributed. For attribution, the original author(s), title, publication source (PeerJ) and either DOI or URL of the article must be cited.
spellingShingle Ethical Issues
Ogbogu, Ubaka
Toews, Maeghan
Ollenberger, Adam
Borry, Pascal
Nobile, Helene
Bergmann, Manuela
Caulfield, Timothy
Newspaper coverage of biobanks
title Newspaper coverage of biobanks
title_full Newspaper coverage of biobanks
title_fullStr Newspaper coverage of biobanks
title_full_unstemmed Newspaper coverage of biobanks
title_short Newspaper coverage of biobanks
title_sort newspaper coverage of biobanks
topic Ethical Issues
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4121587/
https://www.ncbi.nlm.nih.gov/pubmed/25101229
http://dx.doi.org/10.7717/peerj.500
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