Cargando…

Dynamic consent: a patient interface for twenty-first century research networks

Biomedical research is being transformed through the application of information technologies that allow ever greater amounts of data to be shared on an unprecedented scale. However, the methods for involving participants have not kept pace with changes in research capability. In an era when informat...

Descripción completa

Detalles Bibliográficos
Autores principales:	Kaye, Jane, Whitley, Edgar A, Lund, David, Morrison, Michael, Teare, Harriet, Melham, Karen
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Nature Publishing Group 2015
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4130658/ https://www.ncbi.nlm.nih.gov/pubmed/24801761 http://dx.doi.org/10.1038/ejhg.2014.71

Ejemplares similares

Towards ‘Engagement 2.0’: Insights from a study of dynamic consent with biobank participants
por: Teare, Harriet JA, et al.
Publicado: (2015)

The evolution of withdrawal: negotiating research relationships in biobanking
por: Melham, Karen, et al.
Publicado: (2014)

Reflections on dynamic consent in biomedical research: the story so far
por: Teare, Harriet J. A., et al.
Publicado: (2020)

Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
por: Prictor, Megan, et al.
Publicado: (2018)

‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research
por: Haas, Matilda A., et al.
Publicado: (2021)

Desiderata for digital consent in genomic research
por: Parra-Calderón, Carlos Luis, et al.
Publicado: (2018)

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study
por: Spencer, Karen, et al.
Publicado: (2016)

Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research
por: Williams, Hawys, et al.
Publicado: (2015)

The emerging need for family-centric initiatives for obtaining consent in personal genome research
por: Minari, Jusaku, et al.
Publicado: (2014)

Taking issue with the ‘Vancouver style’ into the twenty-first century
por: Morrison, Patrick J, et al.
Publicado: (2005)

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research
por: Budin-Ljøsne, Isabelle, et al.
Publicado: (2017)

The twenty-first century in space
por: Evans, Ben
Publicado: (2015)

Preparing for the twenty-first century
por: Kennedy, Paul M., 1945-
Publicado: (1993)

Shelter for the twenty-first century.
por: Spengler, J D
Publicado: (1990)

Preparing for the twenty-first century /
por: Kennedy, Paul M., 1945-
Publicado: (1993)

Vaccinology in the twenty-first century
por: Barrett, Alan D T
Publicado: (2016)

Entrepreneurship in the twenty-first century
por: Haltiwanger, John
Publicado: (2021)

Managing networks of twenty-first century organisations
por: Tedeschi, Paolo
Publicado: (2007)

Biological networks: the microscope of the twenty-first century?
por: Emmert-Streib, Frank, et al.
Publicado: (2015)

Education for the twenty-first century : issues and prospects : contributions to the work of the International Commission on Education for the Twenty-first Century /
Publicado: (1998)

Clinical Research Training: Scientific Literacy for the Twenty-First Century
por: Clancy, Carolyn M.
Publicado: (2008)

Mycotoxin Research in the twenty-first century: the course for the future is set
por: Usleber, Ewald, et al.
Publicado: (2023)

The impact of twenty-first century personalized medicine versus twenty-first century medicine’s impact on personalization
por: Abettan, Camille, et al.
Publicado: (2020)

Systems and control in the twenty-first century
por: Byrnes, Christopher, et al.
Publicado: (1997)

Community radio in the twenty-first century /
Publicado: (2012)

Social Medicine in the Twenty-First Century
por: Stonington, Scott, et al.
Publicado: (2006)

The new physics for the twenty-first century
por: Fraser, Gordon Murray
Publicado: (2006)

Definitions of biomaterials for the twenty-first century
por: Zhang, Xingdong, et al.
Publicado: (2019)

Whither Enzymology in the Twenty First Century?
por: Marsh, E. N. G.
Publicado: (2016)

Microsurgery Training for the Twenty-First Century
por: Myers, Simon Richard, et al.
Publicado: (2013)

Binocular vision in the twenty-first century
por: Ciuffreda, Kenneth J.
Publicado: (2017)

Vaccines for the twenty-first century society
por: Rappuoli, Rino, et al.
Publicado: (2011)

Ocular Pathogens for the Twenty-First Century
por: Van Gelder, Russell N.
Publicado: (2010)

Ethics in the twenty first century otolaryngology()
por: Cummings, Charles W.
Publicado: (2017)

Emerging Tick-Borne Viruses in the Twenty-First Century
por: Mansfield, Karen L., et al.
Publicado: (2017)

The meanings of modern design towards the twenty-first century : towards the twenty-first century
por: Dormer, Peter
Publicado: (1991)

Research trends on bats in China: A twenty-first century review
por: Feijó, Anderson, et al.
Publicado: (2019)

Toward the twenty-first century : a reader in world politics /
Publicado: (1994)

Accelerators for the twenty-first century: a review
por: Wilson, Edmund J N
Publicado: (1990)

The twenty-first century commercial space imperative
por: Young, Anthony
Publicado: (2015)

Cannot write session to /tmp/vufind_sessions/sess_1ecdh0aq3bf3dc39i9g44utc2m