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The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients
Objective: To investigate the impact of a psycho-educational program developed for the caregivers of patients diagnosed with osteogenesis imperfecta (OI). Methods: The participants consisted of 16 caregivers. The study was designed as a quasi-experimental pre-test/post-test type study consisting...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Galenos Publishing
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4141581/ https://www.ncbi.nlm.nih.gov/pubmed/24932601 http://dx.doi.org/10.4274/jcrpe.1304 |
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author | Bozkurt, Satı Arabacı, Leyla Baysan Vara, Şenay Özen, Samim Gökşen, Damla Darcan, Şükran |
author_facet | Bozkurt, Satı Arabacı, Leyla Baysan Vara, Şenay Özen, Samim Gökşen, Damla Darcan, Şükran |
author_sort | Bozkurt, Satı |
collection | PubMed |
description | Objective: To investigate the impact of a psycho-educational program developed for the caregivers of patients diagnosed with osteogenesis imperfecta (OI). Methods: The participants consisted of 16 caregivers. The study was designed as a quasi-experimental pre-test/post-test type study consisting of 10 semi-structured three-hour training sessions. The data were collected using the “Introductory Information Form” and appropriate scales (Burden Interview, Coping Strategies Scale, Problem-Solving Inventory and Psychosocial Adjustment to Illness Scale). The results were evaluated by descriptive statistics, correlation analysis, one-way variance analysis and Bonferroni analysis. Results: Psychosocial adjustment levels of the caregivers of OI patients before their participation in the educational program were found to be associated with styles of coping with stress, problem-solving skills and care burden. After the psycho-educational training, the majority of the participants reported favorable changes in their lives. Following the offered psycho-education resulted in positive changes in the mean scores of the caregivers (p<0.05). Conclusion: Before the education program, the participants were not able to deal efficiently with many aspects of their caregiver responsibilities and suffered from an emotional burden due to lack of knowledge. The program appears to have provided them both with support to achieve significant psychosocial transformation and with an opportunity to reconsider their lives in multiple dimensions. |
format | Online Article Text |
id | pubmed-4141581 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | Galenos Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-41415812014-08-22 The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients Bozkurt, Satı Arabacı, Leyla Baysan Vara, Şenay Özen, Samim Gökşen, Damla Darcan, Şükran J Clin Res Pediatr Endocrinol Original Article Objective: To investigate the impact of a psycho-educational program developed for the caregivers of patients diagnosed with osteogenesis imperfecta (OI). Methods: The participants consisted of 16 caregivers. The study was designed as a quasi-experimental pre-test/post-test type study consisting of 10 semi-structured three-hour training sessions. The data were collected using the “Introductory Information Form” and appropriate scales (Burden Interview, Coping Strategies Scale, Problem-Solving Inventory and Psychosocial Adjustment to Illness Scale). The results were evaluated by descriptive statistics, correlation analysis, one-way variance analysis and Bonferroni analysis. Results: Psychosocial adjustment levels of the caregivers of OI patients before their participation in the educational program were found to be associated with styles of coping with stress, problem-solving skills and care burden. After the psycho-educational training, the majority of the participants reported favorable changes in their lives. Following the offered psycho-education resulted in positive changes in the mean scores of the caregivers (p<0.05). Conclusion: Before the education program, the participants were not able to deal efficiently with many aspects of their caregiver responsibilities and suffered from an emotional burden due to lack of knowledge. The program appears to have provided them both with support to achieve significant psychosocial transformation and with an opportunity to reconsider their lives in multiple dimensions. Galenos Publishing 2014-06 2014-06-05 /pmc/articles/PMC4141581/ /pubmed/24932601 http://dx.doi.org/10.4274/jcrpe.1304 Text en © Journal of Clinical Research in Pediatric Endocrinology, Published by Galenos Publishing. http://creativecommons.org/licenses/by/2.5/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Article Bozkurt, Satı Arabacı, Leyla Baysan Vara, Şenay Özen, Samim Gökşen, Damla Darcan, Şükran The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients |
title | The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients |
title_full | The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients |
title_fullStr | The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients |
title_full_unstemmed | The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients |
title_short | The Impact of Psycho-Educational Trainingon the Psychosocial Adjustment of Caregivers ofOsteogenesis Imperfecta Patients |
title_sort | impact of psycho-educational trainingon the psychosocial adjustment of caregivers ofosteogenesis imperfecta patients |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4141581/ https://www.ncbi.nlm.nih.gov/pubmed/24932601 http://dx.doi.org/10.4274/jcrpe.1304 |
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