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Practical Barriers and Ethical Challenges in Genetic Data Sharing

The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended...

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Detalles Bibliográficos
Autores principales: Simpson, Claire L., Goldenberg, Aaron J., Culverhouse, Rob, Daley, Denise, Igo, Robert P., Jarvik, Gail P., Mandal, Diptasri M., Mascalzoni, Deborah, Montgomery, Courtney Gray, Pierce, Brandon L., Plaetke, Rosemarie, Shete, Sanjay, Goddard, Katrina A. B., Stein, Catherine M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4143867/
https://www.ncbi.nlm.nih.gov/pubmed/25153467
http://dx.doi.org/10.3390/ijerph110808383