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Practical Barriers and Ethical Challenges in Genetic Data Sharing
The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended...
Autores principales: | Simpson, Claire L., Goldenberg, Aaron J., Culverhouse, Rob, Daley, Denise, Igo, Robert P., Jarvik, Gail P., Mandal, Diptasri M., Mascalzoni, Deborah, Montgomery, Courtney Gray, Pierce, Brandon L., Plaetke, Rosemarie, Shete, Sanjay, Goddard, Katrina A. B., Stein, Catherine M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4143867/ https://www.ncbi.nlm.nih.gov/pubmed/25153467 http://dx.doi.org/10.3390/ijerph110808383 |
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