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Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings fr...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4159472/ https://www.ncbi.nlm.nih.gov/pubmed/24535681 http://dx.doi.org/10.1007/s12687-014-0184-2 |
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author | Middleton, A. Bragin, E. Parker, M. |
author_facet | Middleton, A. Bragin, E. Parker, M. |
author_sort | Middleton, A. |
collection | PubMed |
description | This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately. |
format | Online Article Text |
id | pubmed-4159472 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | Springer Berlin Heidelberg |
record_format | MEDLINE/PubMed |
spelling | pubmed-41594722014-09-15 Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research Middleton, A. Bragin, E. Parker, M. J Community Genet Original Article This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately. Springer Berlin Heidelberg 2014-02-18 2014-10 /pmc/articles/PMC4159472/ /pubmed/24535681 http://dx.doi.org/10.1007/s12687-014-0184-2 Text en © The Author(s) 2014 https://creativecommons.org/licenses/by/2.0/ Open Access This article is distributed under the terms of the Creative Commons Attribution License which permits any use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited. |
spellingShingle | Original Article Middleton, A. Bragin, E. Parker, M. Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
title | Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
title_full | Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
title_fullStr | Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
title_full_unstemmed | Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
title_short | Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
title_sort | finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4159472/ https://www.ncbi.nlm.nih.gov/pubmed/24535681 http://dx.doi.org/10.1007/s12687-014-0184-2 |
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