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Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research

This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings fr...

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Detalles Bibliográficos
Autores principales: Middleton, A., Bragin, E., Parker, M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4159472/
https://www.ncbi.nlm.nih.gov/pubmed/24535681
http://dx.doi.org/10.1007/s12687-014-0184-2
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author Middleton, A.
Bragin, E.
Parker, M.
author_facet Middleton, A.
Bragin, E.
Parker, M.
author_sort Middleton, A.
collection PubMed
description This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately.
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spelling pubmed-41594722014-09-15 Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research Middleton, A. Bragin, E. Parker, M. J Community Genet Original Article This paper offers a description of how social media, traditional media and direct invitation were used as tools for the recruitment of 6,944 research participants for a social sciences study on genomics. The remit was to gather the views of various stakeholders towards sharing incidental findings from whole genome studies. This involved recruiting members of the public, genetic health professionals, genomic researchers and non-genetic health professionals. A novel survey was designed that contained ten integrated films; this was made available online and open for completion by anyone worldwide. The recruitment methods are described together with the convenience and snowballing sampling framework. The most successful strategy involved the utilisation of social media; Facebook, Blogging, Twitter, LinkedIn and Google Ads led to the ascertainment of over 75 % of the final sample. We conclude that the strategies used were successful in recruiting in eclectic mix of appropriate participants. Design of the survey and results from the study are presented separately. Springer Berlin Heidelberg 2014-02-18 2014-10 /pmc/articles/PMC4159472/ /pubmed/24535681 http://dx.doi.org/10.1007/s12687-014-0184-2 Text en © The Author(s) 2014 https://creativecommons.org/licenses/by/2.0/ Open Access This article is distributed under the terms of the Creative Commons Attribution License which permits any use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited.
spellingShingle Original Article
Middleton, A.
Bragin, E.
Parker, M.
Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
title Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
title_full Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
title_fullStr Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
title_full_unstemmed Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
title_short Finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
title_sort finding people who will tell you their thoughts on genomics—recruitment strategies for social sciences research
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4159472/
https://www.ncbi.nlm.nih.gov/pubmed/24535681
http://dx.doi.org/10.1007/s12687-014-0184-2
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