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“I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe

As access to paediatric antiretroviral therapy (ART) continues to improve in sub-Saharan Africa, a new historically specific cohort of HIV-perinatally infected children surviving into adolescent has emerged. Although remarkable successes have been made clinically in keeping this cohort alive and in...

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Autores principales: Mupambireyi, Zivai, Bernays, Sarah, Bwakura-Dangarembizi, Mutsa, Cowan, Frances M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Pergamon Press 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4167251/
https://www.ncbi.nlm.nih.gov/pubmed/25284920
http://dx.doi.org/10.1016/j.childyouth.2014.03.026
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author Mupambireyi, Zivai
Bernays, Sarah
Bwakura-Dangarembizi, Mutsa
Cowan, Frances M.
author_facet Mupambireyi, Zivai
Bernays, Sarah
Bwakura-Dangarembizi, Mutsa
Cowan, Frances M.
author_sort Mupambireyi, Zivai
collection PubMed
description As access to paediatric antiretroviral therapy (ART) continues to improve in sub-Saharan Africa, a new historically specific cohort of HIV-perinatally infected children surviving into adolescent has emerged. Although remarkable successes have been made clinically in keeping this cohort alive and in reasonable health, their social support experiences are still unknown. The research being reported here sought to explore peer social support experiences of HIV-perinatally infected children in Harare, Zimbabwe. In this article, we draw on 56 repeat in-depth interviews (IDIs) conducted in three phases and two focus group discussions (FGDs) with HIV-infected children (11–13 years). Additional interviews were held with 10 carers. Study findings suggested that both children and carers perceive support groups as a safe social space for learning and acquiring HIV information as well as gaining confidence. Additionally, findings highlighted the importance of consistency of participation. Structural and personal barriers to access and participation in support group were also identified. We conclude that support groups are a useful resource for HIV-infected children and therefore should be supported by stable funding.
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spelling pubmed-41672512014-10-01 “I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe Mupambireyi, Zivai Bernays, Sarah Bwakura-Dangarembizi, Mutsa Cowan, Frances M. Child Youth Serv Rev Article As access to paediatric antiretroviral therapy (ART) continues to improve in sub-Saharan Africa, a new historically specific cohort of HIV-perinatally infected children surviving into adolescent has emerged. Although remarkable successes have been made clinically in keeping this cohort alive and in reasonable health, their social support experiences are still unknown. The research being reported here sought to explore peer social support experiences of HIV-perinatally infected children in Harare, Zimbabwe. In this article, we draw on 56 repeat in-depth interviews (IDIs) conducted in three phases and two focus group discussions (FGDs) with HIV-infected children (11–13 years). Additional interviews were held with 10 carers. Study findings suggested that both children and carers perceive support groups as a safe social space for learning and acquiring HIV information as well as gaining confidence. Additionally, findings highlighted the importance of consistency of participation. Structural and personal barriers to access and participation in support group were also identified. We conclude that support groups are a useful resource for HIV-infected children and therefore should be supported by stable funding. Pergamon Press 2014-10 /pmc/articles/PMC4167251/ /pubmed/25284920 http://dx.doi.org/10.1016/j.childyouth.2014.03.026 Text en © 2014 The Authors. Published by Elsevier Ltd. https://creativecommons.org/licenses/by/3.0/This work is licensed under a Creative Commons Attribution 3.0 Unported License (https://creativecommons.org/licenses/by/3.0/) .
spellingShingle Article
Mupambireyi, Zivai
Bernays, Sarah
Bwakura-Dangarembizi, Mutsa
Cowan, Frances M.
“I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe
title “I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe
title_full “I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe
title_fullStr “I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe
title_full_unstemmed “I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe
title_short “I don't feel shy because I will be among others who are just like me…”: The role of support groups for children perinatally infected with HIV in Zimbabwe
title_sort “i don't feel shy because i will be among others who are just like me…”: the role of support groups for children perinatally infected with hiv in zimbabwe
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4167251/
https://www.ncbi.nlm.nih.gov/pubmed/25284920
http://dx.doi.org/10.1016/j.childyouth.2014.03.026
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