Cargando…

On genomics, kin, and privacy

The storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing geno...

Descripción completa

Detalles Bibliográficos
Autores principales: Telenti, Amalio, Ayday, Erman, Hubaux, Jean Pierre
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000Research 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4168742/
https://www.ncbi.nlm.nih.gov/pubmed/25254097
http://dx.doi.org/10.12688/f1000research.3817.1
_version_ 1782335609545687040
author Telenti, Amalio
Ayday, Erman
Hubaux, Jean Pierre
author_facet Telenti, Amalio
Ayday, Erman
Hubaux, Jean Pierre
author_sort Telenti, Amalio
collection PubMed
description The storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing genome data has consequences beyond the individual, as it compromises the privacy of family members. Increasing availability of genome data linked or linkable to metadata through online social networks and services adds one additional layer of complexity to the protection of genome privacy.  The field of computer science and information technology offers solutions to secure genomic data so that individuals, medical personnel or researchers can access only the subset of genomic information required for healthcare or dedicated studies.
format Online
Article
Text
id pubmed-4168742
institution National Center for Biotechnology Information
language English
publishDate 2014
publisher F1000Research
record_format MEDLINE/PubMed
spelling pubmed-41687422014-09-23 On genomics, kin, and privacy Telenti, Amalio Ayday, Erman Hubaux, Jean Pierre F1000Res Commentary The storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing genome data has consequences beyond the individual, as it compromises the privacy of family members. Increasing availability of genome data linked or linkable to metadata through online social networks and services adds one additional layer of complexity to the protection of genome privacy.  The field of computer science and information technology offers solutions to secure genomic data so that individuals, medical personnel or researchers can access only the subset of genomic information required for healthcare or dedicated studies. F1000Research 2014-03-31 /pmc/articles/PMC4168742/ /pubmed/25254097 http://dx.doi.org/10.12688/f1000research.3817.1 Text en Copyright: © 2014 Telenti A et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. http://creativecommons.org/publicdomain/zero/1.0/ Data associated with the article are available under the terms of the Creative Commons Zero "No rights reserved" data waiver (CC0 1.0 Public domain dedication).
spellingShingle Commentary
Telenti, Amalio
Ayday, Erman
Hubaux, Jean Pierre
On genomics, kin, and privacy
title On genomics, kin, and privacy
title_full On genomics, kin, and privacy
title_fullStr On genomics, kin, and privacy
title_full_unstemmed On genomics, kin, and privacy
title_short On genomics, kin, and privacy
title_sort on genomics, kin, and privacy
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4168742/
https://www.ncbi.nlm.nih.gov/pubmed/25254097
http://dx.doi.org/10.12688/f1000research.3817.1
work_keys_str_mv AT telentiamalio ongenomicskinandprivacy
AT aydayerman ongenomicskinandprivacy
AT hubauxjeanpierre ongenomicskinandprivacy