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Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases

PURPOSE: To explore parental perceptions and experiences regarding the return of genomic incidental research findings in children with rare diseases. METHODS: Parents of children affected by various rare diseases were invited to participate in focus groups or individual telephone interviews in Montr...

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Detalles Bibliográficos
Autores principales:	Kleiderman, Erika, Knoppers, Bartha Maria, Fernandez, Conrad V, Boycott, Kym M, Ouellette, Gail, Wong-Rieger, Durhane, Adam, Shelin, Richer, Julie, Avard, Denise
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2014
Materias:	Research Ethics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173986/ https://www.ncbi.nlm.nih.gov/pubmed/24356209 http://dx.doi.org/10.1136/medethics-2013-101648

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