Cargando…

Unmet Needs of People with Severe Multiple Sclerosis and Their Carers: Qualitative Findings for a Home-Based Intervention

BACKGROUND: Few data on services for people with severe multiple sclerosis (MS) are available. The Palliative Network for Severely Affected Adults with MS in Italy (PeNSAMI) developed a home palliative care program for MS patients and carers, preceded by a literature review and qualitative study (he...

Descripción completa

Detalles Bibliográficos
Autores principales:	Borreani, Claudia, Bianchi, Elisabetta, Pietrolongo, Erika, Rossi, Ilaria, Cilia, Sabina, Giuntoli, Miranda, Giordano, Andrea, Confalonieri, Paolo, Lugaresi, Alessandra, Patti, Francesco, Grasso, Maria Grazia, de Carvalho, Laura Lopes, Palmisano, Lucia, Zaratin, Paola, Battaglia, Mario Alberto, Solari, Alessandra
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2014
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4186842/ https://www.ncbi.nlm.nih.gov/pubmed/25286321 http://dx.doi.org/10.1371/journal.pone.0109679

Ejemplares similares

Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial
por: Solari, Alessandra, et al.
Publicado: (2015)

Erratum to: ‘Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial’
por: Solari, A., et al.
Publicado: (2016)

Randomized controlled trial of a home-based palliative approach for people with severe multiple sclerosis
por: Solari, Alessandra, et al.
Publicado: (2017)

Participant perspectives of a home-based palliative approach for people with severe multiple sclerosis: A qualitative study
por: Giovannetti, Ambra Mara, et al.
Publicado: (2018)

Development of a Short Version of MSQOL-54 Using Factor Analysis and Item Response Theory
por: Rosato, Rosalba, et al.
Publicado: (2016)

Patient Expression of Emotions and Neurologist Responses in First Multiple Sclerosis Consultations
por: Del Piccolo, Lidia, et al.
Publicado: (2015)

Decision-Making in Multiple Sclerosis Consultations in Italy: Third Observer and Patient Assessments
por: Pietrolongo, Erika, et al.
Publicado: (2013)

Conversion to secondary progressive multiple sclerosis: Multistakeholder experiences and needs in Italy
por: Giovannetti, Ambra Mara, et al.
Publicado: (2020)

Viability of a MSQOL-54 general health-related quality of life score using bifactor model
por: Giordano, Andrea, et al.
Publicado: (2021)

Applying multidimensional computerized adaptive testing to the MSQOL-54: a simulation study
por: Giordano, Andrea, et al.
Publicado: (2023)

Beyond Disease: Happiness, Goals, and Meanings among Persons with Multiple Sclerosis and Their Caregivers
por: Delle Fave, Antonella, et al.
Publicado: (2017)

Managing the transition (ManTra): a resource for persons with secondary progressive multiple sclerosis and their health professionals: protocol for a mixed-methods study in Italy
por: Giovannetti, Ambra Mara, et al.
Publicado: (2017)

Advance Care Planning in Neurodegenerative Disorders: A Scoping Review
por: Giordano, Andrea, et al.
Publicado: (2022)

Risk-benefit considerations in the treatment of relapsing-remitting multiple sclerosis
por: Lugaresi, Alessandra, et al.
Publicado: (2013)

Study protocol on advance care planning in multiple sclerosis (ConCure-SM): intervention construction and multicentre feasibility trial
por: De Panfilis, Ludovica, et al.
Publicado: (2021)

The Unmet Needs of Pancreatic Cancer Carers Are Associated with Anxiety and Depression in Patients and Carers
por: Huynh, Thi N. T., et al.
Publicado: (2023)

Unmet care needs of people with a neurological chronic disease: a cross-sectional study in Italy on Multiple Sclerosis
por: Ponzio, Michela, et al.
Publicado: (2015)

Measuring dementia carers' unmet need for services - an exploratory mixed method study
por: Stirling, Christine, et al.
Publicado: (2010)

Role Preferences of People with Multiple Sclerosis: Image-Revised, Computerized Self-Administered Version of the Control Preference Scale
por: Solari, Alessandra, et al.
Publicado: (2013)

Cognitive impairment and “invisible symptoms” are not associated with CCSVI in MS
por: Leone, Carmela, et al.
Publicado: (2013)

Defining unmet clinical need across the pathway of brain tumor care: a patient and carer perspective
por: Sage, William, et al.
Publicado: (2019)

The unmet needs of informal carers of stroke survivors: a protocol for a systematic review of quantitative and qualitative studies
por: Denham, Alexandra M J, et al.
Publicado: (2018)

“This is our life now. Our new normal”: A qualitative study of the unmet needs of carers of stroke survivors
por: Denham, Alexandra M. J., et al.
Publicado: (2019)

A resilience group training program for people with multiple sclerosis: Results of a pilot single-blind randomized controlled trial and nested qualitative study
por: Giovannetti, Ambra Mara, et al.
Publicado: (2020)

Erratum to: Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial
por: Solari, A.
Publicado: (2017)

Job satisfaction among physicians and nurses involved in the management of multiple sclerosis: the role of happiness and meaning at work
por: Negri, Luca, et al.
Publicado: (2021)

Burden and resources in caregivers of people with multiple sclerosis: A qualitative study
por: Benini, Stefano, et al.
Publicado: (2023)

The unmet need for COVID-19 treatment in immunocompromised patients
por: Alessandra, D’Abramo, et al.
Publicado: (2022)

Construction of a User-Led Resource for People Transitioning to Secondary Progressive Multiple Sclerosis: Results of an International Nominal Group Study
por: Giovannetti, Ambra Mara, et al.
Publicado: (2020)

Correction: The unmet need for COVID-19 treatment in immunocompromised patients
por: D’Abramo, Alessandra, et al.
Publicado: (2023)

Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad
por: Skingley, Ann, et al.
Publicado: (2020)

An “all-wheel drive” proposal to accelerate clinical research in common and rare neurological diseases
por: Salvetti, Marco, et al.
Publicado: (2019)

Improving patient–physician dialog: commentary on the results of the MS Choices survey
por: Lugaresi, Alessandra, et al.
Publicado: (2012)

Social connectedness of carers: An Australian national survey of carers
por: Poon, Abner Weng Cheong, et al.
Publicado: (2022)

The Impact of Caregiving on Successful Ageing of Informal Carers: A Qualitative Study among Respiratory Patients’ Caregivers
por: Benko Meštrović, Snježana, et al.
Publicado: (2023)

Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer)
por: Ferrer-Cascales, Rosario, et al.
Publicado: (2016)

Study protocol: young carers and young adult carers in Switzerland
por: Leu, Agnes, et al.
Publicado: (2018)

Engaging Carers in Co-Design: Development of the Carer Readiness Tool
por: White, Sian, et al.
Publicado: (2021)

Modelling Spillover Effects on Informal Carers: The Carer QALY Trap
por: Mott, David J., et al.
Publicado: (2023)

An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers
por: Pesantes, M. Amalia, et al.
Publicado: (2016)

Cannot write session to /tmp/vufind_sessions/sess_45p7259epa1ocbe11c5ru206v2