The Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale (HS-FOCUS) Questionnaire: item reduction and further validation

PURPOSE: The Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale (HS-FOCUS) Questionnaire is a patient and parent-completed disease-specific instrument used in Hunter syndrome (mucopolysaccharidosis II), a rare paediatric progressive multi-systemic lysosomal storage disease. The obj...

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Detalles Bibliográficos
Autores principales: Wiklund, Ingela, Raluy-Callado, Mireia, Chen, Wen-Hung, Muenzer, Joseph, Fang, Juanzhi, Whiteman, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2014
Materias:
Brief Communication
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4186975/
https://www.ncbi.nlm.nih.gov/pubmed/24806354
http://dx.doi.org/10.1007/s11136-014-0703-y

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