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"Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study

BACKGROUND: Universal developmental surveillance programs aimed at early identification and targeted early intervention significantly improve short- and long-term outcomes in children at risk of developmental disorders. However, a significant challenge remains in providing sufficiently rigorous rese...

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Autores principales: Eapen, Valsamma, Woolfenden, Susan, Williams, Katrina, Jalaludin, Bin, Dissanayake, Cheryl, Axelsson, Emma L, Murphy, Elisabeth, Eastwood, John, Descallar, Joseph, Beasley, Deborah, Črnčec, Rudi, Short, Katherine, Silove, Natalie, Einfeld, Stewart, Prior, Margot
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4190387/
https://www.ncbi.nlm.nih.gov/pubmed/25241772
http://dx.doi.org/10.1186/1471-2431-14-234
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author Eapen, Valsamma
Woolfenden, Susan
Williams, Katrina
Jalaludin, Bin
Dissanayake, Cheryl
Axelsson, Emma L
Murphy, Elisabeth
Eastwood, John
Descallar, Joseph
Beasley, Deborah
Črnčec, Rudi
Short, Katherine
Silove, Natalie
Einfeld, Stewart
Prior, Margot
author_facet Eapen, Valsamma
Woolfenden, Susan
Williams, Katrina
Jalaludin, Bin
Dissanayake, Cheryl
Axelsson, Emma L
Murphy, Elisabeth
Eastwood, John
Descallar, Joseph
Beasley, Deborah
Črnčec, Rudi
Short, Katherine
Silove, Natalie
Einfeld, Stewart
Prior, Margot
author_sort Eapen, Valsamma
collection PubMed
description BACKGROUND: Universal developmental surveillance programs aimed at early identification and targeted early intervention significantly improve short- and long-term outcomes in children at risk of developmental disorders. However, a significant challenge remains in providing sufficiently rigorous research and robust evidence to inform policy and service delivery. This paper describes the methods of the ‘Watch Me Grow’ study that aims to maximise accurate early detection of children with developmental disorders through a partnership formed between policy makers, service providers and researchers. METHODS/DESIGN: A mixed methods study design was developed consisting of: (1) a qualitative study of parents and health service providers to investigate barriers and enablers of developmental surveillance; (2) recruitment of a birth cohort and their longitudinal follow-up to 18 months of age to: a) assess risk factors for not accessing existing developmental surveillance programs and b) estimate the prevalence of children identified with developmental risk; (3) comparison of surveillance outcomes with a reference standard at 18 months of age to assess the diagnostic test accuracy of existing and alternative developmental surveillance tools; and (4) comparison of developmental surveillance models to inform policy recommendations. Data linkage will be used to determine the uptake and representativeness of the study participant group versus non-participants. DISCUSSION: The Watch Me Grow study is expected to provide a collaborative opportunity to enhance universal developmental surveillance for early accurate identification of developmental risk. This will also provide quality evidence about identification of developmental risk and access to services to be embedded in existing practice with linkages to policy development.
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spelling pubmed-41903872014-10-10 "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study Eapen, Valsamma Woolfenden, Susan Williams, Katrina Jalaludin, Bin Dissanayake, Cheryl Axelsson, Emma L Murphy, Elisabeth Eastwood, John Descallar, Joseph Beasley, Deborah Črnčec, Rudi Short, Katherine Silove, Natalie Einfeld, Stewart Prior, Margot BMC Pediatr Study Protocol BACKGROUND: Universal developmental surveillance programs aimed at early identification and targeted early intervention significantly improve short- and long-term outcomes in children at risk of developmental disorders. However, a significant challenge remains in providing sufficiently rigorous research and robust evidence to inform policy and service delivery. This paper describes the methods of the ‘Watch Me Grow’ study that aims to maximise accurate early detection of children with developmental disorders through a partnership formed between policy makers, service providers and researchers. METHODS/DESIGN: A mixed methods study design was developed consisting of: (1) a qualitative study of parents and health service providers to investigate barriers and enablers of developmental surveillance; (2) recruitment of a birth cohort and their longitudinal follow-up to 18 months of age to: a) assess risk factors for not accessing existing developmental surveillance programs and b) estimate the prevalence of children identified with developmental risk; (3) comparison of surveillance outcomes with a reference standard at 18 months of age to assess the diagnostic test accuracy of existing and alternative developmental surveillance tools; and (4) comparison of developmental surveillance models to inform policy recommendations. Data linkage will be used to determine the uptake and representativeness of the study participant group versus non-participants. DISCUSSION: The Watch Me Grow study is expected to provide a collaborative opportunity to enhance universal developmental surveillance for early accurate identification of developmental risk. This will also provide quality evidence about identification of developmental risk and access to services to be embedded in existing practice with linkages to policy development. BioMed Central 2014-09-22 /pmc/articles/PMC4190387/ /pubmed/25241772 http://dx.doi.org/10.1186/1471-2431-14-234 Text en © Eapen et al.; licensee BioMed Central Ltd. 2014 This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Study Protocol
Eapen, Valsamma
Woolfenden, Susan
Williams, Katrina
Jalaludin, Bin
Dissanayake, Cheryl
Axelsson, Emma L
Murphy, Elisabeth
Eastwood, John
Descallar, Joseph
Beasley, Deborah
Črnčec, Rudi
Short, Katherine
Silove, Natalie
Einfeld, Stewart
Prior, Margot
"Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study
title "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study
title_full "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study
title_fullStr "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study
title_full_unstemmed "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study
title_short "Are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study
title_sort "are you available for the next 18 months?" - methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘watch me grow’ study
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4190387/
https://www.ncbi.nlm.nih.gov/pubmed/25241772
http://dx.doi.org/10.1186/1471-2431-14-234
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