Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

BACKGROUND: Effectively educating families about the risks and benefits of genomic tests such as whole exome sequencing (WES) offers numerous challenges, including the complexity of test results and potential loss of privacy. Research on best practices for obtaining informed consent (IC) in a variet...

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Detalles Bibliográficos
Autores principales: Scollon, Sarah, Bergstrom, Katie, Kerstein, Robin A, Wang, Tao, Hilsenbeck, Susan G, Ramamurthy, Uma, Gibbs, Richard A, Eng, Christine M, Chintagumpala, Murali M, Berg, Stacey L, McCullough, Laurence B, McGuire, Amy L, Plon, Sharon E, Parsons, D Williams
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4195891/
https://www.ncbi.nlm.nih.gov/pubmed/25317207
http://dx.doi.org/10.1186/s13073-014-0069-3

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