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The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
BACKGROUND: Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia. METHOD: Longitudinal...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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S. Karger AG
2014
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4202610/ https://www.ncbi.nlm.nih.gov/pubmed/25337077 http://dx.doi.org/10.1159/000358823 |
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author | Gústafsdóttir, Margrét |
author_facet | Gústafsdóttir, Margrét |
author_sort | Gústafsdóttir, Margrét |
collection | PubMed |
description | BACKGROUND: Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia. METHOD: Longitudinal interviews with 8 family members were conducted. In total, 25 interviews were carried out over a period of 5 years. RESULTS: The experience of these families of looking after a close person with dementia appeared to be influenced by (a) the multifaceted meaning of ties, (b) the perception of purposeful relief of the day-care services and (c) the progress of the disease. CONCLUSION: All families found the services of specialized day-care units both useful and pleasant. This kind of resource was shown to make everyday life much more manageable for all persons involved, most importantly for the patient with dementia. |
format | Online Article Text |
id | pubmed-4202610 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | S. Karger AG |
record_format | MEDLINE/PubMed |
spelling | pubmed-42026102014-10-21 The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units Gústafsdóttir, Margrét Dement Geriatr Cogn Dis Extra Original Research Article BACKGROUND: Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia. METHOD: Longitudinal interviews with 8 family members were conducted. In total, 25 interviews were carried out over a period of 5 years. RESULTS: The experience of these families of looking after a close person with dementia appeared to be influenced by (a) the multifaceted meaning of ties, (b) the perception of purposeful relief of the day-care services and (c) the progress of the disease. CONCLUSION: All families found the services of specialized day-care units both useful and pleasant. This kind of resource was shown to make everyday life much more manageable for all persons involved, most importantly for the patient with dementia. S. Karger AG 2014-09-11 /pmc/articles/PMC4202610/ /pubmed/25337077 http://dx.doi.org/10.1159/000358823 Text en Copyright © 2014 by S. Karger AG, Basel http://creativecommons.org/licenses/by-nc/3.0/ This is an Open Access article licensed under the terms of the Creative Commons Attribution-NonCommercial 3.0 Unported license (CC BY-NC) (www.karger.com/OA-license), applicable to the online version of the article only. Users may download, print and share this work on the Internet for noncommercial purposes only, provided the original work is properly cited, and a link to the original work on http://www.karger.com and the terms of this license are included in any shared versions. |
spellingShingle | Original Research Article Gústafsdóttir, Margrét The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units |
title | The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units |
title_full | The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units |
title_fullStr | The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units |
title_full_unstemmed | The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units |
title_short | The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units |
title_sort | family's experience of sharing the care of a person with dementia with the services in specialized day-care units |
topic | Original Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4202610/ https://www.ncbi.nlm.nih.gov/pubmed/25337077 http://dx.doi.org/10.1159/000358823 |
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