Cargando…
A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 20...
Autores principales: | , , , , , , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2014
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4215046/ https://www.ncbi.nlm.nih.gov/pubmed/24714444 http://dx.doi.org/10.1136/amiajnl-2013-002594 |
_version_ | 1782342048999800832 |
---|---|
author | Agarwal, Rajat Kumar Sedai, Amit Dhimal, Sunil Ankita, Kumari Clemente, Luigi Siddique, Sulman Yaqub, Naila Khalid, Sadaf Itrat, Fatima Khan, Anwar Gilani, Sarah Khan Marwah, Priya Soni, Rajpreet Missiry, Mohamed El Hussain, Mohamed Hamed Uderzo, Cornelio Faulkner, Lawrence |
author_facet | Agarwal, Rajat Kumar Sedai, Amit Dhimal, Sunil Ankita, Kumari Clemente, Luigi Siddique, Sulman Yaqub, Naila Khalid, Sadaf Itrat, Fatima Khan, Anwar Gilani, Sarah Khan Marwah, Priya Soni, Rajpreet Missiry, Mohamed El Hussain, Mohamed Hamed Uderzo, Cornelio Faulkner, Lawrence |
author_sort | Agarwal, Rajat Kumar |
collection | PubMed |
description | Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 2008. This online open-access database covers data recording, analyzing, and reporting besides enabling knowledge exchange, telemedicine, capacity building, and quality assurance. As of February 2014, over 2400 patients have been registered and 112 BMTs have been performed with outcomes comparable to international standards, but at a fraction of the cost. This approach avoids medical emigration and contributes to local healthcare strengthening and competitiveness. This paper presents the experience and clinical outcomes associated with the use of this platform built using open-source tools and focusing on a locally pertinent tertiary care procedure—BMT. |
format | Online Article Text |
id | pubmed-4215046 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-42150462014-11-03 A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries Agarwal, Rajat Kumar Sedai, Amit Dhimal, Sunil Ankita, Kumari Clemente, Luigi Siddique, Sulman Yaqub, Naila Khalid, Sadaf Itrat, Fatima Khan, Anwar Gilani, Sarah Khan Marwah, Priya Soni, Rajpreet Missiry, Mohamed El Hussain, Mohamed Hamed Uderzo, Cornelio Faulkner, Lawrence J Am Med Inform Assoc Case Report Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 2008. This online open-access database covers data recording, analyzing, and reporting besides enabling knowledge exchange, telemedicine, capacity building, and quality assurance. As of February 2014, over 2400 patients have been registered and 112 BMTs have been performed with outcomes comparable to international standards, but at a fraction of the cost. This approach avoids medical emigration and contributes to local healthcare strengthening and competitiveness. This paper presents the experience and clinical outcomes associated with the use of this platform built using open-source tools and focusing on a locally pertinent tertiary care procedure—BMT. BMJ Publishing Group 2014-11 2014-04-08 /pmc/articles/PMC4215046/ /pubmed/24714444 http://dx.doi.org/10.1136/amiajnl-2013-002594 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/ |
spellingShingle | Case Report Agarwal, Rajat Kumar Sedai, Amit Dhimal, Sunil Ankita, Kumari Clemente, Luigi Siddique, Sulman Yaqub, Naila Khalid, Sadaf Itrat, Fatima Khan, Anwar Gilani, Sarah Khan Marwah, Priya Soni, Rajpreet Missiry, Mohamed El Hussain, Mohamed Hamed Uderzo, Cornelio Faulkner, Lawrence A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
title | A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
title_full | A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
title_fullStr | A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
title_full_unstemmed | A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
title_short | A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
title_sort | prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries |
topic | Case Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4215046/ https://www.ncbi.nlm.nih.gov/pubmed/24714444 http://dx.doi.org/10.1136/amiajnl-2013-002594 |
work_keys_str_mv | AT agarwalrajatkumar aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT sedaiamit aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT dhimalsunil aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT ankitakumari aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT clementeluigi aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT siddiquesulman aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT yaqubnaila aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT khalidsadaf aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT itratfatima aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT khananwar aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT gilanisarahkhan aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT marwahpriya aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT sonirajpreet aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT missirymohamedel aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT hussainmohamedhamed aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT uderzocornelio aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT faulknerlawrence aprospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT agarwalrajatkumar prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT sedaiamit prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT dhimalsunil prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT ankitakumari prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT clementeluigi prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT siddiquesulman prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT yaqubnaila prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT khalidsadaf prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT itratfatima prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT khananwar prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT gilanisarahkhan prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT marwahpriya prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT sonirajpreet prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT missirymohamedel prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT hussainmohamedhamed prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT uderzocornelio prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries AT faulknerlawrence prospectiveinternationalcooperativeinformationtechnologyplatformbuiltusingopensourcetoolsforimprovingtheaccesstoandsafetyofbonemarrowtransplantationinlowandmiddleincomecountries |