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A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries

Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 20...

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Autores principales: Agarwal, Rajat Kumar, Sedai, Amit, Dhimal, Sunil, Ankita, Kumari, Clemente, Luigi, Siddique, Sulman, Yaqub, Naila, Khalid, Sadaf, Itrat, Fatima, Khan, Anwar, Gilani, Sarah Khan, Marwah, Priya, Soni, Rajpreet, Missiry, Mohamed El, Hussain, Mohamed Hamed, Uderzo, Cornelio, Faulkner, Lawrence
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4215046/
https://www.ncbi.nlm.nih.gov/pubmed/24714444
http://dx.doi.org/10.1136/amiajnl-2013-002594
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author Agarwal, Rajat Kumar
Sedai, Amit
Dhimal, Sunil
Ankita, Kumari
Clemente, Luigi
Siddique, Sulman
Yaqub, Naila
Khalid, Sadaf
Itrat, Fatima
Khan, Anwar
Gilani, Sarah Khan
Marwah, Priya
Soni, Rajpreet
Missiry, Mohamed El
Hussain, Mohamed Hamed
Uderzo, Cornelio
Faulkner, Lawrence
author_facet Agarwal, Rajat Kumar
Sedai, Amit
Dhimal, Sunil
Ankita, Kumari
Clemente, Luigi
Siddique, Sulman
Yaqub, Naila
Khalid, Sadaf
Itrat, Fatima
Khan, Anwar
Gilani, Sarah Khan
Marwah, Priya
Soni, Rajpreet
Missiry, Mohamed El
Hussain, Mohamed Hamed
Uderzo, Cornelio
Faulkner, Lawrence
author_sort Agarwal, Rajat Kumar
collection PubMed
description Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 2008. This online open-access database covers data recording, analyzing, and reporting besides enabling knowledge exchange, telemedicine, capacity building, and quality assurance. As of February 2014, over 2400 patients have been registered and 112 BMTs have been performed with outcomes comparable to international standards, but at a fraction of the cost. This approach avoids medical emigration and contributes to local healthcare strengthening and competitiveness. This paper presents the experience and clinical outcomes associated with the use of this platform built using open-source tools and focusing on a locally pertinent tertiary care procedure—BMT.
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spelling pubmed-42150462014-11-03 A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries Agarwal, Rajat Kumar Sedai, Amit Dhimal, Sunil Ankita, Kumari Clemente, Luigi Siddique, Sulman Yaqub, Naila Khalid, Sadaf Itrat, Fatima Khan, Anwar Gilani, Sarah Khan Marwah, Priya Soni, Rajpreet Missiry, Mohamed El Hussain, Mohamed Hamed Uderzo, Cornelio Faulkner, Lawrence J Am Med Inform Assoc Case Report Jagriti Innovations developed a collaboration tool in partnership with the Cure2Children Foundation that has been used by health professionals in Italy, Pakistan, and India for the collaborative management of patients undergoing bone marrow transplantation (BMT) for thalassemia major since August 2008. This online open-access database covers data recording, analyzing, and reporting besides enabling knowledge exchange, telemedicine, capacity building, and quality assurance. As of February 2014, over 2400 patients have been registered and 112 BMTs have been performed with outcomes comparable to international standards, but at a fraction of the cost. This approach avoids medical emigration and contributes to local healthcare strengthening and competitiveness. This paper presents the experience and clinical outcomes associated with the use of this platform built using open-source tools and focusing on a locally pertinent tertiary care procedure—BMT. BMJ Publishing Group 2014-11 2014-04-08 /pmc/articles/PMC4215046/ /pubmed/24714444 http://dx.doi.org/10.1136/amiajnl-2013-002594 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/
spellingShingle Case Report
Agarwal, Rajat Kumar
Sedai, Amit
Dhimal, Sunil
Ankita, Kumari
Clemente, Luigi
Siddique, Sulman
Yaqub, Naila
Khalid, Sadaf
Itrat, Fatima
Khan, Anwar
Gilani, Sarah Khan
Marwah, Priya
Soni, Rajpreet
Missiry, Mohamed El
Hussain, Mohamed Hamed
Uderzo, Cornelio
Faulkner, Lawrence
A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
title A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
title_full A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
title_fullStr A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
title_full_unstemmed A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
title_short A prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
title_sort prospective international cooperative information technology platform built using open-source tools for improving the access to and safety of bone marrow transplantation in low- and middle-income countries
topic Case Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4215046/
https://www.ncbi.nlm.nih.gov/pubmed/24714444
http://dx.doi.org/10.1136/amiajnl-2013-002594
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