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From pediatric to adult care: strategic evaluation of a transition program for patients with osteogenesis imperfecta
BACKGROUND: Achieving a successful transition from pediatric to adult care for young adults with special needs, especially rare genetic diseases such as osteogenesis imperfecta (OI), is a prominent issue in healthcare research. This transition represents a challenge for patients with OI, their famil...
Autores principales: | Dogba, Maman Joyce, Rauch, Frank, Wong, Trudy, Ruck, Joanne, Glorieux, Francis H, Bedos, Christophe |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4228071/ https://www.ncbi.nlm.nih.gov/pubmed/25366588 http://dx.doi.org/10.1186/s12913-014-0489-1 |
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