Cargando…

Neglected ethical issues in biobank management: Results from a U.S. study

The empirical literature on the ethical, legal, and social implications (ELSI) of biobanking has almost entirely relied on the perspectives of those outside of biobanks, such as the general public, researchers, and specimen contributors. Little attention has been paid to the perspectives and practic...

Descripción completa

Detalles Bibliográficos
Autores principales:	Cadigan, R Jean, Lassiter, Dragana, Haldeman, Kaaren, Conlon, Ian, Reavely, Erik, Henderson, Gail E
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer-Verlag 2013
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4228790/ https://www.ncbi.nlm.nih.gov/pubmed/25401081 http://dx.doi.org/10.1186/2195-7819-9-1

Ejemplares similares

Characterizing biobank organizations in the U.S.: results from a national survey
por: Henderson, Gail E, et al.
Publicado: (2013)

Challenges to biobanking in LMICs during COVID-19: time to reconceptualise research ethics guidance for pandemics and public health emergencies?
por: Singh, Shenuka, et al.
Publicado: (2022)

Ethical, legal, social, and policy issues in the use of genomic technology by the U.S. Military
por: Mehlman, Maxwell J., et al.
Publicado: (2014)

Cancer patient perceptions on the ethical and legal issues related to biobanking
por: Master, Zubin, et al.
Publicado: (2013)

Ethics and biobanks
por: Hansson, M G
Publicado: (2009)

Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues
por: Kasperbauer, T. J., et al.
Publicado: (2021)

Morocco's First Biobank: Establishment, Ethical Issues, Biomedical Research Opportunities, and Challenges
por: Lhousni, Saida, et al.
Publicado: (2020)

Health care ethics programs in U.S. Hospitals: results from a National Survey
por: Danis, Marion, et al.
Publicado: (2021)

Cross-Cultural Considerations in U.S. Research Ethics Education
por: Heitman, Elizabeth
Publicado: (2014)

Biobank research and ethics: the problem of informed consent in Polish biobanks
por: Pawlikowski, Jakub, et al.
Publicado: (2011)

Calculating the impact of COVID-19 pandemic on child abuse and neglect in the U.S.
por: Nguyen, Loc H.
Publicado: (2021)

Common U.S. GAAP Issues Facing Accountants
por: Rampulla, Renee
Publicado: (2020)

Regulating Gamete Donation in the U.S.: Ethical, Legal and Social Implications
por: Sabatello, Maya
Publicado: (2015)

Neglected Tropical Diseases, Neglected Data Sources, and Neglected Issues
por: Singer, Burton H., et al.
Publicado: (2007)

Parallel but connected: Nuances of conducting behavioral and social science research alongside ethically challenging HIV remission trials
por: Henderson, Gail E., et al.
Publicado: (2020)

Authorship Issues and Conflict in the U.S. Academic Chemical Community
por: Seeman, Jeffrey I., et al.
Publicado: (2015)

Committee on Ethical Issues - Preliminary results of survey on ethics in psychiatric practice
por: Schouler-Ocak, M.
Publicado: (2023)

Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks
por: Aicardi, Christine, et al.
Publicado: (2016)

Flawed Ethics Recommendations of the U.S. EPA’s Human Studies Review Board
por: Shrader-Frechette, Kristin
Publicado: (2007)

The ethics of data sharing and biobanking in health research
por: Bull, Susan, et al.
Publicado: (2020)

Biobanks in the low- and middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements—a qualitative study involving biobank managers
por: Abdelhafiz, Ahmed Samir, et al.
Publicado: (2022)

Doing things you never imagined: Professional and ethical issues in the U.S. outpatient physical therapy setting during the COVID-19 pandemic
por: Ditwiler, Rebecca Edgeworth, et al.
Publicado: (2022)

Critical issues in the new U.S.-Mexico relations : stumbling blocks and constructive paths /
Publicado: (2008)

Understanding Ethical, Legal and Societal Issues (ELSIs) in Human Biobanking and Genomics for Research and Healthcare in Zimbabwe: The Genomics Inheritance Law Ethics and Society (GILES) initiative
por: Matimba, Alice, et al.
Publicado: (2019)

The Health Literacy of U.S. Immigrant Adolescents: A Neglected Research Priority in a Changing World
por: Santos, Maricel G., et al.
Publicado: (2018)

New insights into an old issue: modelling the U.S. food prices
por: Kirikkaleli, Dervis, et al.
Publicado: (2022)

Ethical aspects of human biobanks: a systematic review
por: Budimir, Danijela, et al.
Publicado: (2011)

Consent, ethics and genetic biobanks: the case of the Athlome project
por: Thompson, Rachel, et al.
Publicado: (2017)

Ethical and deontological aspects of pediatric biobanks: the situation in Italy
por: Cannovo, Nunzia, et al.
Publicado: (2020)

Recommendations for the development of Egyptian human biobanking ethical guidelines
por: Samir Abdelhafiz, Ahmed, et al.
Publicado: (2021)

Paediatric biobanking for health: The ethical, legal, and societal landscape
por: Casati, Sara, et al.
Publicado: (2022)

Special Issue — From Biobanks to the Clinic
por: Knoppers, Bartha Maria, et al.
Publicado: (2014)

Ethical dimensions of neglected tropical disease programming
por: Addiss, David G, et al.
Publicado: (2020)

Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research
por: Goisauf, Melanie, et al.
Publicado: (2019)

Ethical and Legal Concerns Associated With Withdrawing Mechanical Circulatory Support: A U.S. Perspective
por: Mueller, Paul S.
Publicado: (2022)

Environmental health and hazardous waste issues related to the U.S.-Mexico border.
por: Carter, D E, et al.
Publicado: (1996)

Navigating social and ethical challenges of biobanking for human microbiome research
por: Chuong, Kim H., et al.
Publicado: (2017)

Bioethics and large-scale biobanking: individualistic ethics and collective projects(*)
por: Williams, Garrath
Publicado: (2005)

Becoming and being a biobank donor: The role of relationships and ethics
por: Mezinska, Signe, et al.
Publicado: (2020)

A Literature Review on Ethics for AI in Biomedical Research and Biobanking
por: Kargl, Michaela, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_6i682k3ts6r6f63ghogl0k43h9