Cargando…

The social value of clinical research

BACKGROUND: International documents on ethical conduct in clinical research have in common the principle that potential harms to research participants must be proportional to anticipated benefits. The anticipated benefits that can justify human research consist of direct benefits to the research par...

Descripción completa

Detalles Bibliográficos
Autores principales:	Habets, Michelle GJL, van Delden, Johannes JM, Bredenoord, Annelien L
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2014
Materias:	Debate
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236527/ https://www.ncbi.nlm.nih.gov/pubmed/25189994 http://dx.doi.org/10.1186/1472-6939-15-66

Ejemplares similares

Personalized assent for pediatric biobanks
por: Giesbertz, Noor A. A., et al.
Publicado: (2016)

Ethics parallel research: an approach for (early) ethical guidance of biomedical innovation
por: Jongsma, Karin R., et al.
Publicado: (2020)

Better governance starts with better words: why responsible human tissue research demands a change of language
por: Lensink, Michael A., et al.
Publicado: (2022)

The social licence for data-intensive health research: towards co-creation, public value and trust
por: Muller, Sam H. A., et al.
Publicado: (2021)

The fiduciary obligation of the physician-researcher in phase IV trials
por: Bernabe, Rosemarie DLC, et al.
Publicado: (2014)

Consent procedures in pediatric biobanks
por: Giesbertz, Noor AA, et al.
Publicado: (2015)

The risk-benefit task of research ethics committees: An evaluation of current approaches and the need to incorporate decision studies methods
por: Bernabe, Rosemarie D L C, et al.
Publicado: (2012)

Combining value of information analysis and ethical argumentation in decisions on participation of vulnerable patients in clinical research
por: van der Wilt, Gert J., et al.
Publicado: (2018)

Asking the right questions: towards a person-centered conception of shared decision-making regarding treatment of advanced chronic kidney disease in older patients
por: Verberne, Wouter R., et al.
Publicado: (2022)

The social value of a QALY: raising the bar or barring the raise?
por: Donaldson, Cam, et al.
Publicado: (2011)

Concepts of social epidemiology in health services research
por: von dem Knesebeck, Olaf
Publicado: (2015)

Inclusion of Residual Tissue in Biobanks: Opt-In or Opt-Out?
por: Giesbertz, Noor A. A., et al.
Publicado: (2012)

When Children Become Adults: Should Biobanks Re-Contact?
por: Giesbertz, Noor A. A., et al.
Publicado: (2016)

Bringing prosocial values to translational, disease-specific stem cell research
por: Sass, Reuben G
Publicado: (2014)

HIV prevention, structural change and social values: the need for an explicit normative approach
por: Parkhurst, Justin O
Publicado: (2012)

Knowledge ‘Translation’ as social learning: negotiating the uptake of research-based knowledge in practice
por: Salter, K. L., et al.
Publicado: (2016)

Navigating social and ethical challenges of biobanking for human microbiome research
por: Chuong, Kim H., et al.
Publicado: (2017)

A typology of useful evidence: approaches to increase the practical value of intervention research
por: Hasson, Henna, et al.
Publicado: (2020)

Recognising values and engaging communities across cultures: towards developing a cultural protocol for researchers
por: Memon, Rakhshi, et al.
Publicado: (2021)

Clinical governance and research ethics as barriers to UK low-risk population-based health research?
por: van Teijlingen, Edwin R, et al.
Publicado: (2008)

The social process of escalation: a promising focus for crisis management research
por: Bergström, Johan, et al.
Publicado: (2012)

Informed consent instead of assent is appropriate in children from the age of twelve: Policy implications of new findings on children’s competence to consent to clinical research
por: Hein, Irma M., et al.
Publicado: (2015)

Rights to social determinants of flourishing? A paradigm for disability and public health research and policy
por: Berghs, Maria, et al.
Publicado: (2019)

A Mental Wealth perspective: crossing disciplines to understand the value of collective mental and social assets in the post-COVID-19 era
por: Tran, Kristen, et al.
Publicado: (2022)

Value-based genomic screening: exploring genomic screening for chronic diseases using triple value principles
por: Dombrádi, Viktor, et al.
Publicado: (2019)

Clinical research and medical care: towards effective and complete integration
por: Sacristán, José A
Publicado: (2015)

Integrating implementation science in clinical research to maximize public health impact: a call for the reporting and alignment of implementation strategy use with implementation outcomes in clinical research
por: Rudd, Brittany N., et al.
Publicado: (2020)

From theory to practice: improving the impact of health services research
por: Brazil, Kevin, et al.
Publicado: (2005)

Health, human rights, and the conduct of clinical research within oppressed populations
por: Mills, Edward J, et al.
Publicado: (2007)

Depression and anxiety among people living with and beyond cancer: a growing clinical and research priority
por: Niedzwiedz, Claire L., et al.
Publicado: (2019)

A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?
por: van den Heuvel, Lieke M., et al.
Publicado: (2021)

Improving coordination through information continuity: a framework for translational research
por: Gardner, Karen, et al.
Publicado: (2014)

Why language matters: insights and challenges in applying a social determination of health approach in a North-South collaborative research program
por: Spiegel, Jerry M, et al.
Publicado: (2015)

Can context justify an ethical double standard for clinical research in developing countries?
por: Landes, Megan
Publicado: (2005)

Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research
por: Facio, Flavia M, et al.
Publicado: (2012)

Violation of ethical principles in clinical research. Influences and possible solutions for Latin America
por: Moreno, Borys Alberto Cornejo, et al.
Publicado: (2012)

Value based competition in health care’s ethical drawbacks and the need for a values-driven approach
por: Groenewoud, A. Stef, et al.
Publicado: (2019)

Value based maternal and newborn care requires alignment of adequate resources with high value activities
por: De Jonge, Ank, et al.
Publicado: (2019)

Real‐time ethics engagement in biomedical research: Ethics from bench to bedside
por: Sugarman, Jeremy, et al.
Publicado: (2020)

The importance of values in evidence-based medicine
por: Kelly, Michael P., et al.
Publicado: (2015)

Cannot write session to /tmp/vufind_sessions/sess_4gcn0rsf0pvksdo27936m79ue2