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National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Autores principales: | Alonso, Verónica, Abaitua, Ignacio, Zurriaga, Óscar, Astray, Jenaro, Errezola, Manuel, Aldana-Espinal, Josefa M, Margolles, Mario J, Jiménez, Josep, Palomar, Joaquín A, Santana, Milagrosa, Ramalle-Gomarra, Enrique, Ramos, Julián M, Arribas, Federico E, Álamo, Rufino, Gutiérrez-Ávila, Gonzalo, Galmés, Antònia, García-Ribes, Miguel, Navarro, Carmen, Ardanaz, Eva, de la Paz, Manuel Posada |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4249671/ http://dx.doi.org/10.1186/1750-1172-9-S1-P5 |
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