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Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure
| Autores principales: | , , , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2014
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4249675/ http://dx.doi.org/10.1186/1750-1172-9-S1-P7 |
| _version_ | 1782346876660482048 |
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| author | Wood, Jill Siedman, Stuart Siedman, Jennifer Levy, Paul Brown, Kyle McBride, Kim Flanigan, Kevin Marques, Raquel Feldman, Arleta PleHcha, Robert Ekins, Sean |
| author_facet | Wood, Jill Siedman, Stuart Siedman, Jennifer Levy, Paul Brown, Kyle McBride, Kim Flanigan, Kevin Marques, Raquel Feldman, Arleta PleHcha, Robert Ekins, Sean |
| author_sort | Wood, Jill |
| collection | PubMed |
| description | |
| format | Online Article Text |
| id | pubmed-4249675 |
| institution | National Center for Biotechnology Information |
| language | English |
| publishDate | 2014 |
| publisher | BioMed Central |
| record_format | MEDLINE/PubMed |
| spelling | pubmed-42496752014-12-02 Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure Wood, Jill Siedman, Stuart Siedman, Jennifer Levy, Paul Brown, Kyle McBride, Kim Flanigan, Kevin Marques, Raquel Feldman, Arleta PleHcha, Robert Ekins, Sean Orphanet J Rare Dis Poster Presentation BioMed Central 2014-11-11 /pmc/articles/PMC4249675/ http://dx.doi.org/10.1186/1750-1172-9-S1-P7 Text en Copyright © 2014 Wood et al; licensee BioMed Central Ltd. http://creativecommons.org/licenses/by/4.0 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
| spellingShingle | Poster Presentation Wood, Jill Siedman, Stuart Siedman, Jennifer Levy, Paul Brown, Kyle McBride, Kim Flanigan, Kevin Marques, Raquel Feldman, Arleta PleHcha, Robert Ekins, Sean Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| title | Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| title_full | Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| title_fullStr | Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| title_full_unstemmed | Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| title_short | Sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| title_sort | sanfilippo syndrome registry project and natural history studies: an example of patients, parents and researchers collaborating for a cure |
| topic | Poster Presentation |
| url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4249675/ http://dx.doi.org/10.1186/1750-1172-9-S1-P7 |
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