Building a data sharing model for global genomic research

Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the ne...

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Detalles Bibliográficos
Autores principales: Kosseim, Patricia, Dove, Edward S, Baggaley, Carman, Meslin, Eric M, Cate, Fred H, Kaye, Jane, Harris, Jennifer R, Knoppers, Bartha M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Opinion
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282015/
https://www.ncbi.nlm.nih.gov/pubmed/25221857
http://dx.doi.org/10.1186/s13059-014-0430-2
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author Kosseim, Patricia
Dove, Edward S
Baggaley, Carman
Meslin, Eric M
Cate, Fred H
Kaye, Jane
Harris, Jennifer R
Knoppers, Bartha M
author_facet Kosseim, Patricia
Dove, Edward S
Baggaley, Carman
Meslin, Eric M
Cate, Fred H
Kaye, Jane
Harris, Jennifer R
Knoppers, Bartha M
author_sort Kosseim, Patricia
collection PubMed
description Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the need to share genomic data globally.
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spelling pubmed-42820152015-01-03 Building a data sharing model for global genomic research Kosseim, Patricia Dove, Edward S Baggaley, Carman Meslin, Eric M Cate, Fred H Kaye, Jane Harris, Jennifer R Knoppers, Bartha M Genome Biol Opinion Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the need to share genomic data globally. BioMed Central 2014-08-11 2014 /pmc/articles/PMC4282015/ /pubmed/25221857 http://dx.doi.org/10.1186/s13059-014-0430-2 Text en © Kosseim et al.; licensee BioMed Central Ltd. 2014 The licensee has exclusive rights to distribute this article, in any medium, for 12 months following its publication. After this time, the article is available under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Opinion
Kosseim, Patricia
Dove, Edward S
Baggaley, Carman
Meslin, Eric M
Cate, Fred H
Kaye, Jane
Harris, Jennifer R
Knoppers, Bartha M
Building a data sharing model for global genomic research
title Building a data sharing model for global genomic research
title_full Building a data sharing model for global genomic research
title_fullStr Building a data sharing model for global genomic research
title_full_unstemmed Building a data sharing model for global genomic research
title_short Building a data sharing model for global genomic research
title_sort building a data sharing model for global genomic research
topic Opinion
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282015/
https://www.ncbi.nlm.nih.gov/pubmed/25221857
http://dx.doi.org/10.1186/s13059-014-0430-2
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