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Experience of taking care of children exposed to HIV: a trajectory of expectations
OBJECTIVE: to learn about the experience of caregivers/mothers providing care to infants exposed to HIV through vertical transmission. METHODS: this qualitative study used Symbolic Interactionism as the theoretical framework. A total of 39 caregivers of children exposed to HIV in follow-up at a spec...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Escola de Enfermagem de Ribeirão Preto / Universidade de São
Paulo
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4292661/ https://www.ncbi.nlm.nih.gov/pubmed/25493682 http://dx.doi.org/10.1590/0104-1169.3607.2489 |
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author | Alvarenga, Willyane de Andrade Dupas, Giselle |
author_facet | Alvarenga, Willyane de Andrade Dupas, Giselle |
author_sort | Alvarenga, Willyane de Andrade |
collection | PubMed |
description | OBJECTIVE: to learn about the experience of caregivers/mothers providing care to infants exposed to HIV through vertical transmission. METHODS: this qualitative study used Symbolic Interactionism as the theoretical framework. A total of 39 caregivers of children exposed to HIV in follow-up at a specialized service were interviewed. Data were analyzed through inductive content analysis. RESULTS: four categories were identified that report on the lonely experience of handling the child's antiretroviral therapy, mainly due to a lack of information or incomplete information; being attentive to required care, such as the use of prophylaxis for pneumonia, vaccines, and other practices restricted to the mother-child interaction; the desire to omit the HIV out of fear of prejudice and fear of the disease, considering future prospects. CONCLUSION: the HIV and the threat this infection may affect the child cause apprehension and feelings such as fear, guilt and anxiety in the caregivers. Healthcare workers need to work together with mothers so they are able to cope with demands and distress. Only then will the treatment to avoid vertical transmission be efficient and will mother and child be supported during the process, despite apprehension with the outcome. |
format | Online Article Text |
id | pubmed-4292661 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2014 |
publisher | Escola de Enfermagem de Ribeirão Preto / Universidade de São
Paulo |
record_format | MEDLINE/PubMed |
spelling | pubmed-42926612015-01-26 Experience of taking care of children exposed to HIV: a trajectory of expectations Alvarenga, Willyane de Andrade Dupas, Giselle Rev Lat Am Enfermagem Original Articles OBJECTIVE: to learn about the experience of caregivers/mothers providing care to infants exposed to HIV through vertical transmission. METHODS: this qualitative study used Symbolic Interactionism as the theoretical framework. A total of 39 caregivers of children exposed to HIV in follow-up at a specialized service were interviewed. Data were analyzed through inductive content analysis. RESULTS: four categories were identified that report on the lonely experience of handling the child's antiretroviral therapy, mainly due to a lack of information or incomplete information; being attentive to required care, such as the use of prophylaxis for pneumonia, vaccines, and other practices restricted to the mother-child interaction; the desire to omit the HIV out of fear of prejudice and fear of the disease, considering future prospects. CONCLUSION: the HIV and the threat this infection may affect the child cause apprehension and feelings such as fear, guilt and anxiety in the caregivers. Healthcare workers need to work together with mothers so they are able to cope with demands and distress. Only then will the treatment to avoid vertical transmission be efficient and will mother and child be supported during the process, despite apprehension with the outcome. Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2014 /pmc/articles/PMC4292661/ /pubmed/25493682 http://dx.doi.org/10.1590/0104-1169.3607.2489 Text en http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License, which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Articles Alvarenga, Willyane de Andrade Dupas, Giselle Experience of taking care of children exposed to HIV: a trajectory of expectations |
title | Experience of taking care of children exposed to HIV: a trajectory of
expectations
|
title_full | Experience of taking care of children exposed to HIV: a trajectory of
expectations
|
title_fullStr | Experience of taking care of children exposed to HIV: a trajectory of
expectations
|
title_full_unstemmed | Experience of taking care of children exposed to HIV: a trajectory of
expectations
|
title_short | Experience of taking care of children exposed to HIV: a trajectory of
expectations
|
title_sort | experience of taking care of children exposed to hiv: a trajectory of
expectations |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4292661/ https://www.ncbi.nlm.nih.gov/pubmed/25493682 http://dx.doi.org/10.1590/0104-1169.3607.2489 |
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