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Experience of taking care of children exposed to HIV: a trajectory of expectations

OBJECTIVE: to learn about the experience of caregivers/mothers providing care to infants exposed to HIV through vertical transmission. METHODS: this qualitative study used Symbolic Interactionism as the theoretical framework. A total of 39 caregivers of children exposed to HIV in follow-up at a spec...

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Autores principales: Alvarenga, Willyane de Andrade, Dupas, Giselle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4292661/
https://www.ncbi.nlm.nih.gov/pubmed/25493682
http://dx.doi.org/10.1590/0104-1169.3607.2489
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author Alvarenga, Willyane de Andrade
Dupas, Giselle
author_facet Alvarenga, Willyane de Andrade
Dupas, Giselle
author_sort Alvarenga, Willyane de Andrade
collection PubMed
description OBJECTIVE: to learn about the experience of caregivers/mothers providing care to infants exposed to HIV through vertical transmission. METHODS: this qualitative study used Symbolic Interactionism as the theoretical framework. A total of 39 caregivers of children exposed to HIV in follow-up at a specialized service were interviewed. Data were analyzed through inductive content analysis. RESULTS: four categories were identified that report on the lonely experience of handling the child's antiretroviral therapy, mainly due to a lack of information or incomplete information; being attentive to required care, such as the use of prophylaxis for pneumonia, vaccines, and other practices restricted to the mother-child interaction; the desire to omit the HIV out of fear of prejudice and fear of the disease, considering future prospects. CONCLUSION: the HIV and the threat this infection may affect the child cause apprehension and feelings such as fear, guilt and anxiety in the caregivers. Healthcare workers need to work together with mothers so they are able to cope with demands and distress. Only then will the treatment to avoid vertical transmission be efficient and will mother and child be supported during the process, despite apprehension with the outcome.
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spelling pubmed-42926612015-01-26 Experience of taking care of children exposed to HIV: a trajectory of expectations Alvarenga, Willyane de Andrade Dupas, Giselle Rev Lat Am Enfermagem Original Articles OBJECTIVE: to learn about the experience of caregivers/mothers providing care to infants exposed to HIV through vertical transmission. METHODS: this qualitative study used Symbolic Interactionism as the theoretical framework. A total of 39 caregivers of children exposed to HIV in follow-up at a specialized service were interviewed. Data were analyzed through inductive content analysis. RESULTS: four categories were identified that report on the lonely experience of handling the child's antiretroviral therapy, mainly due to a lack of information or incomplete information; being attentive to required care, such as the use of prophylaxis for pneumonia, vaccines, and other practices restricted to the mother-child interaction; the desire to omit the HIV out of fear of prejudice and fear of the disease, considering future prospects. CONCLUSION: the HIV and the threat this infection may affect the child cause apprehension and feelings such as fear, guilt and anxiety in the caregivers. Healthcare workers need to work together with mothers so they are able to cope with demands and distress. Only then will the treatment to avoid vertical transmission be efficient and will mother and child be supported during the process, despite apprehension with the outcome. Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2014 /pmc/articles/PMC4292661/ /pubmed/25493682 http://dx.doi.org/10.1590/0104-1169.3607.2489 Text en http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License, which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Alvarenga, Willyane de Andrade
Dupas, Giselle
Experience of taking care of children exposed to HIV: a trajectory of expectations
title Experience of taking care of children exposed to HIV: a trajectory of expectations
title_full Experience of taking care of children exposed to HIV: a trajectory of expectations
title_fullStr Experience of taking care of children exposed to HIV: a trajectory of expectations
title_full_unstemmed Experience of taking care of children exposed to HIV: a trajectory of expectations
title_short Experience of taking care of children exposed to HIV: a trajectory of expectations
title_sort experience of taking care of children exposed to hiv: a trajectory of expectations
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4292661/
https://www.ncbi.nlm.nih.gov/pubmed/25493682
http://dx.doi.org/10.1590/0104-1169.3607.2489
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