Cargando…

Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research

With one million people treated every 36 hours, routinely collected UK National Health Service (NHS) health data has huge potential for medical research. Advances in data acquisition from electronic patient records (EPRs) means such data are increasingly digital and can be anonymised for research pu...

Descripción completa

Detalles Bibliográficos
Autores principales:	Williams, Hawys, Spencer, Karen, Sanders, Caroline, Lund, David, Whitley, Edgar A, Kaye, Jane, Dixon, William G
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Gunther Eysenbach 2015
Materias:	Viewpoint
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4319083/ https://www.ncbi.nlm.nih.gov/pubmed/25586934 http://dx.doi.org/10.2196/medinform.3525

Ejemplares similares

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study
por: Spencer, Karen, et al.
Publicado: (2016)

Dynamic consent: a patient interface for twenty-first century research networks
por: Kaye, Jane, et al.
Publicado: (2015)

Trusted Data Spaces as a Viable and Sustainable Solution for Networks of Population-Based Patient Registries
por: Nicholson, Nicholas, et al.
Publicado: (2023)

Community Genetics screening in a pandemic: solutions for pre-test education, informed consent, and specimen collection
por: Terrill, Bronwyn, et al.
Publicado: (2023)

Changing FDA Approval Standards: Ethical Implications for Patient Consent
por: Darrow, Jonathan J., et al.
Publicado: (2021)

“Trustworthiness,” confidence in estimated effects, and confidently translating research into clinical practice
por: Riley, Sean P., et al.
Publicado: (2023)

Deemed consent for organ donation in Northern Ireland
por: Parsons, Jordan A., et al.
Publicado: (2021)

Consent Codes: Upholding Standard Data Use Conditions
por: Dyke, Stephanie O. M., et al.
Publicado: (2016)

Approach to Informed Consent in Telepsychiatric Service: Indian Perspective
por: Gowda, Guru S, et al.
Publicado: (2020)

A Review on Problems of China's Hospice Care and Analysis of Possible Solutions
por: Huang, Qiu-Si
Publicado: (2015)

School Mental Health Program in India—Issues and Possible Practical Solutions
por: Raman, Vijaya, et al.
Publicado: (2023)

Children, HIV, emergencies and Sustainable Development Goals: roadblocks ahead and possible solutions
por: Chamla, Dick, et al.
Publicado: (2018)

Occult drug resistance in tuberculosis: Emerging issues, upcoming challenges & possible solutions
por: Mishra, Baijayantimala, et al.
Publicado: (2020)

Towards ‘Engagement 2.0’: Insights from a study of dynamic consent with biobank participants
por: Teare, Harriet JA, et al.
Publicado: (2015)

COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust
por: Blease, Charlotte, et al.
Publicado: (2021)

Connected Medical Technology and Cybersecurity Informed Consent: A New Paradigm
por: Tully, Jeffrey, et al.
Publicado: (2020)

Alexander the Great Trusts Doctor Philip: The Patient-Physician Relationship as the First Step of the Healing Process
por: Vilela, Eduardo, et al.
Publicado: (2020)

Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research
por: Lea, Nathan Christopher, et al.
Publicado: (2016)

The reliability and integrity of overall survival data based on follow-up records only and potential solutions to the challenges
por: Huang, Huiyao, et al.
Publicado: (2022)

Covidom, a Telesurveillance Solution for Home Monitoring Patients With COVID-19
por: Yordanov, Youri, et al.
Publicado: (2020)

Artificial Intelligence and Human Trust in Healthcare: Focus on Clinicians
por: Asan, Onur, et al.
Publicado: (2020)

HIV vaccines beyond COVID‐19: merits of trust
por: Kublin, James G
Publicado: (2021)

Ethical Issues for Direct-to-Consumer Digital Psychotherapy Apps: Addressing Accountability, Data Protection, and Consent
por: Martinez-Martin, Nicole, et al.
Publicado: (2018)

The Potential for Increasing Risk of Consent Refusal in COVID-19 Trials: Considering Underlying Reasons and Responses
por: Russell, James A., et al.
Publicado: (2022)

Ensuring public trust in digital therapeutics: a pharmacopeial perspective
por: Ambrose, Michael
Publicado: (2021)

All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent
por: Schneble, Christophe Olivier, et al.
Publicado: (2020)

The Power of Patient Engagement With Electronic Health Records as Research Participants
por: Pawelek, Jeff, et al.
Publicado: (2022)

What motivates participation in HIV cure trials? A call for real-time assessment to improve informed consent
por: Peay, Holly L, et al.
Publicado: (2015)

Applying Blockchain Technology to Address the Crisis of Trust During the COVID-19 Pandemic
por: Khurshid, Anjum
Publicado: (2020)

Consumer-Mediated Data Exchange for Research: Current State of US Law, Technology, and Trust
por: Bracha, Yiscah, et al.
Publicado: (2019)

Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities
por: McMillan, Brian, et al.
Publicado: (2018)

Why Reviewing Apps Is Not Enough: Transparency for Trust (T4T) Principles of Responsible Health App Marketplaces
por: Wykes, Til, et al.
Publicado: (2019)

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions
por: Hall, Leslie Kelly, et al.
Publicado: (2015)

So Many Choices, How Do I Choose? Considerations for Selecting Digital Health Interventions to Support Immunization Confidence and Demand
por: Chaney, Sarah Cunard, et al.
Publicado: (2023)

A Novel Patient Values Tab for the Electronic Health Record: A User-Centered Design Approach
por: Desai, Anjali Varma, et al.
Publicado: (2021)

Trust Me, I’m a Chatbot: How Artificial Intelligence in Health Care Fails the Turing Test
por: Powell, John
Publicado: (2019)

Toward an Ecologically Valid Conceptual Framework for the Use of Artificial Intelligence in Clinical Settings: Need for Systems Thinking, Accountability, Decision-making, Trust, and Patient Safety Considerations in Safeguarding the Technology and Clinicians
por: Choudhury, Avishek
Publicado: (2022)

Valid and Reproducible Quantitative Assessment of Cardiac Volumes by Echocardiography in Patients with Valvular Heart Diseases—Possible or Wishful Thinking?
por: Hagendorff, Andreas, et al.
Publicado: (2023)

Electronic Health Records as an Educational Tool: Viewpoint
por: Habboush, Yacob, et al.
Publicado: (2018)

The Electronic Health Record Inbox: Recommendations for Relief
por: Sinsky, Christine A., et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_rdcqosj17o6dg41lf8v642ipnp